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▲ADHD drug treatment and risk of negative events and outcomesbmj.com
336 points by bookofjoe 1 days ago | 437 comments
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klipklop 1 days ago [-]
The irony about getting treatment for ADHD is that medical providers make it very hard to get the proper medication and treatment. People with ADHD are horrible at following through and handle rejection poorly. So the worse the ADHD is, the less likely somebody will be able to actually get treatment for it. A lot of people suffer because doctors fear losing their license like so many did during the pain pill debacle. It's a risk for them to prescribe a stimulant, but zero risk to tell you to eff off.

As many have said in this thread, most doctors will tell you to go away or give you Welbutrin (which works poorly, if at all). I feel for your struggle.

mithametacs 1 days ago [-]
I literally did the thing you’re not supposed to do.

my psych kept giving me everything by Adderall. So I went to one of those online doctors and got Adderall through her.

Then I just told my psychiatrist that I have Adderall prescription and she took it over.

For the record, she’s actually really reasonable and I like her but very conservative about the stimulants. Which when I finally got them were a revelation. Medication that actually works.

mandevil 22 hours ago [-]
The DEA put Adderall on its list of the most abused medication, and limits production of it and investigates doctors who prescribe too much of it. This is a response to the problems with the abuse of legal opiates a decade ago- the DEA now takes potential abuse of legal drugs much more seriously and adderall (an amphetamine- it's a cousin of meth) is at a high risk of abuse.

Your psychiatrist is trying to deal with the DEA monitoring, and doesn't want to be the one who first puts you on it, but continuing an existing Rx is not treated the same by the DEA, as I understand it. So the online doc is putting her license more at risk to a DEA investigation, but your in-person doctor is less exposed.

N.B. this is how I understand the things that my wife has said to me. She is actually a pharmacist who has to deal with these things, and I might have garbled something.

lysp 18 hours ago [-]
> The DEA put Adderall on its list of the most abused medication, and limits production of it and investigates doctors who prescribe too much of it.

The other thing on top of limiting its production, it's not just for the US, it's worldwide.

Australia has a shortage of various types of ADHD medication due to this DEA production limit too.

https://www.tga.gov.au/safety/shortages/information-about-ma...

Also, the Australian Government requested increased production to cover these shortages, and the DEA rejected that request.

So those limitations have a worldwide effect due to the US being one of only a few countries that produce these drugs.

bawolff 17 hours ago [-]
Is there something stopping other countries from spinning up a factory?
graemep 13 hours ago [-]
They have. It was originally made by a British company but is now out of patent and is made by multiple companies in multiple countries.
unmole 16 hours ago [-]
- Supply chains

- Skilled workforce

- Risk capital

- Regulatory overhead

bawolff 14 hours ago [-]
Other drugs are made outside the USA, what is so special about adderal (besides us regulations which other countries dont have to listen to)
safety1st 12 hours ago [-]
Probably that it's basically a weaker form of meth. I mean they're chemically similar, they have the same effects, adderall is potentially addictive, nobody wants to end up dealing with something similar to America's meth epidemic. That's not to say you can't manufacture and prescribe this drug safely, but a lot more people are going to have a lot more reservations about it than if you want to crank out a generic Tylenol or something.
gosub100 3 hours ago [-]
If that was true there would be a shortage of pain pills
claudex 13 hours ago [-]
Maybe it's just that the cost to set up the production elsewhere is too much for the expected market. The shortage of the drugs doesn't mean there will be enough buyer to cover the cost (and make enough profit).
colechristensen 7 hours ago [-]
Nothing is special about it. Lots of drug manufacturing is low-risk low-reward but setup costs are high so nobody thinks it's worth the investment.
bratwurst3000 12 hours ago [-]
the article is about methylphenydat (ritalin) and not adderall. Amphetamie is such an easy molekul, stepping up production should be super easy.
chris_wot 13 hours ago [-]
Trump wouldn't like it.
ljf 16 hours ago [-]
I found this article about the steps the DEA are taking, really interesting https://www.catherinemccarthymd.com/med-shortage-news-1/the-...
tstrimple 19 hours ago [-]
> the DEA now takes potential abuse of legal drugs much more seriously and adderall (an amphetamine- it's a cousin of meth) is at a high risk of abuse.

I know that I process Adderall differently having ADHD, but I still struggle to see how it's used recreationally. I took it somewhat consistently for over a year for ADHD treatment until I missed an appointment and couldn't get around to scheduling another before my prescription ran out. After that getting back on became more trouble than it was worth. Not once did I ever feel a high from Adderall. My best naps were on Adderall. Not once after dropping it did I ever feel withdrawals or the urge to take more. The only thing I felt while taking it was constant dry mouth and my brain no longer constantly jumped between topics outside of my control.

My brother abuses controlled substances. When I told him I was taking Adderall he warned me to be careful and talked about his issues with it and I just couldn't relate at all. I'm no stranger to addiction. I'm an alcoholic and am addicted to nicotine via fruity vapes. But Adderall? Nothing at all.

adastra22 12 hours ago [-]
My doc says the best diagnostic for whether you have ADHD is to prescribe Adderall and see what happens. Those with ADHD react very, VERY differently to the drug than the rest of the population.
10 hours ago [-]
bratwurst3000 12 hours ago [-]
i dont think thats true. I have ADHD and get amphetamine as medication. I gave it some friends and it had similiar effect as with me. they where hyper focused and aware. I think its what amphetamine does with every human. Regular humans have more focus and adhd people have suddenly focus but netherless same.
adastra22 12 hours ago [-]
Focus is the same. It's the euphoric high and increased hyperactivity in neurotypicals which is the divergent response.
shlant 10 hours ago [-]
the euphoric high also happens in those with ADHD but only when they first start taking it. I would assume if you took it recreationally and not consistently you would have the same effect
notfromhere 9 hours ago [-]
Eh. When you take it the first time the euphoria is more that you can focus and the mind becomes quieter. It’s not like a party drug
pantalaimon 6 hours ago [-]
The euphoria from amphetamine (in reasonable doses) is also rather subtle - it's no MDMA where it's very much in your face.

But lifted mood and energy is why it's taken recreationally, the euphoria can then come what you make from that.

lazide 4 hours ago [-]
One neurotypical I know who took 20mg of Adderall IR ended up going into a hyperfocused ‘can’t look away from the road’ 12+ hour road trip without stopping and couldn’t sleep for 3 days afterwards.

An ADHD’er I know who did the same thing, took a nap instead, and then actually started their taxes.

These are not the same thing.

FreezerburnV 3 hours ago [-]
Not doubting you but… how? Adderall leaves your system in like 4 hours. The half life is crazy short and it’s extremely noticeable when it happens. I don’t understand how someone would fail to sleep for 3 days, or even hyper focus for 12 hours, when the drug is going to be completely gone from their system and not affecting them a fraction of the time into that period. Are you sure it wasn’t something else or they didn’t take more doses or other things?
olyjohn 46 minutes ago [-]
Extended release. Those fucking things would keep me up for 3 days. If I take a the same dose of instant release, it'll be worn off at the end of the day and I'll sleep like a log. They say it wears off in 4 hours, but a single dose keeps working all day for me. Depends on how you metabolize it.
lazide 2 hours ago [-]
That’s what they described.
bratwurst3000 8 hours ago [-]
thats where i have to disagree. if I give anyone 5mg dexteoamphetamin they would be less hyperactive and more focused on one thing. If you do too much it doesnt matter if you are regular brain or not. 80mg of dextroamphetamin would make everyone look like a speed freak.

If it would make people hyperactive it wouldnt be used for learning and sitting there 16h hyperfocused.

IMHO

edit: to explain better. imagine a adhd brain having dopamin swings between -1 and +1. While there are those swings people cant execute their plans and cant focus on one goal. when you give them adderal or similar they get a powerboost to blasting +2 dopamin lvl and can keep that for hours.

so if you give a regular human beeing the same amount of adderall it will blast its brain on +2lvl dopamin also.

so adhd people and regular people behave the samw on adderall.

the thing with adhd it is not a lack of dopamin but an iregular flow of dopamin that is the problem. The solution is to hypercharge the brain with dopamin to get constant lvl.

LoganDark 12 hours ago [-]
> I still struggle to see how it's used recreationally.

- Adderall keeps you awake. Some people use that to be awake for very long periods of time. Long drives, marathons, etc.

- Adderall can make boring tasks seem engaging, so it can be used, for example, to help a student study. Combining that with no need to sleep that night, can become a bit of an unfair advantage.

- Adderall can cause a high, even though I've only ever experienced that with pure dextroamphetamine. For me it caused everything to feel warm and pleasurable somehow, the first couple weeks I was taking it.

Now I feel nothing except the wakefulness, although when I stop taking it for a while and then start taking it again, sometimes I will spontaneously do every chore that's been building up over the past months in a single day. That's just how it goes for me apparently.

radu_floricica 8 hours ago [-]
That's not recreationally. That's actually a good, useful drug effect (even if not specifically for ADHD).

I'm more than a little pissed that governments don't let us use drugs like this responsibly.

Henchman21 7 hours ago [-]
Governments treat their citizens like children to be watched over, not like adults capable of making decisions. Until that changes, expect to be pissed off.
LoganDark 6 hours ago [-]
> I'm more than a little pissed that governments don't let us use drugs like this responsibly.

I mean yes. Proper education and harm reduction is vastly superior to this "controlled substances" bullshit.

adastra22 12 hours ago [-]
> Adderall keeps you awake

For many (not all) ADHD'ers, amphetamine or caffeine makes them sleepy.

> Adderall can make boring tasks seem engaging

This is true

> so it can be used, for example, to help a student study ... can become a bit of an unfair advantage

Unfair? This isn't sports. Nobody is being cheated by a study-enhancing drug.

> Adderall can cause a high, even though I've only ever experienced that with pure dextroamphetamine. For me it caused everything to feel warm and pleasurable somehow, the first couple weeks I was taking it.

Interesting. FYI ADHD people feel none of that. If anything, the opposite: on stimulants ADHD people feel relaxed and normal, bringing them down from hyperactivity and allowing them to focus on their life.

shlant 10 hours ago [-]
> Adderall can cause a high

> Interesting. FYI ADHD people feel none of that.

Please don't speak for a whole group of people when you don't know what you're talking about. Euphoria is very common when people with ADHD first start taking amphetamines, it just goes away after a week or so.

hirvi74 7 hours ago [-]
> Interesting. FYI ADHD people feel none of that. If anything, the opposite: on stimulants ADHD people feel relaxed and normal, bringing them down from hyperactivity and allowing them to focus on their life.

That is common myth. It's a matter of dosage over time. If one takes 120mg of Adderall in one go, then I can assure you they will not be calm nor relaxed. The relaxed feeling comes with a build of tolerance over time and with the lowest therapeutic dosage possible.

I won't deny that people with ADHD might perceive more benefits from stimulants than those without ADHD. I person with poor vision probably would perceive more benefit from eyeglass than I do with 20/20 vision. The glasses work the same for both of us, I just don't benefit from the effects. Also, stimulants do not work for about 10%-30% of people with ADHD, and if the reactions were truly that different, then there would be no controversy about testing for ADHD. It'd be as simple as just examining the effects of a pill.

In the beginning, I felt euphoric from stimulants and I am ADHD as they come. On the rare occasion, I still might get hit with a glimpse of it. Though that is typically after I take a break from medication for some time.

Back when I was in college, I cannot tell you how many people I knew with legitimate ADHD that used to rail Adderall and Adderall XR pills (yes, the XR are just as easy to abuse).

Check out this subreddit if you care. Search for the term "ADHD" and you will see how the medication affects a portion of the ADHD population:

https://www.reddit.com/r/StopSpeeding/

adastra22 4 hours ago [-]
There’s a lot of myth in this myth-correcting post. I’ve doubled dosed by accident and although I felt like my heart was going to explode (and was very anxious over that), I still felt absolutely nothing resembling a euphoric high.

If you have good vision you do not benefit from glasses. In fact it makes things worse, as those with good vision are able to use their eye muscles to adjust focus but the glasses make that harder.

hirvi74 3 hours ago [-]
> I’ve doubled dosed by accident and although I felt like my heart was going to explode (and was very anxious over that), I still felt absolutely nothing resembling a euphoric high.

Doubling one's dosage does not mean much without stating the prescribed dosage. 5mg => 10mg is much different than 60mg => 120mg.

Also, the euphoric high tends to become lessened the longer one is on stimulants, even if the dosage is increased, due to neuroadaptation, i.e., a decrease in dopamine receptor availability and changes to downstream signaling effects of dopamine transmission.

Increasing the dosage on the second day of medication vs second year of medication may likely have significantly different effects in regards to the presence of euphoria.

LoganDark 6 hours ago [-]
> If one takes 120mg of Adderall in one go, then I can assure you they will not be calm nor relaxed.

If one takes 120mg of Adderall in one go, and they don't have a tolerance, I'd be surprised if their heart doesn't explode.

hirvi74 2 hours ago [-]
Unless you are a Finnish super solider like Aino Koivunen

https://en.wikipedia.org/wiki/Aimo_Koivunen

LoganDark 12 hours ago [-]
> For many (not all) ADHD'ers, amphetamine or caffeine makes them sleepy.

You're right, I was mainly speaking about people without ADHD using stimulants.

> Unfair? This isn't sports. Nobody is being cheated by a study-enhancing drug.

No, but it can lead to bad health effects for the student, and bad habits like dependence.

> Interesting. FYI ADHD people feel none of that.

I guess my ADHD diagnosis must be mistaken then? And my executive dysfunction must come from somewhere else...

ADHD is not a single neurotype. As even the most basic example, multiple different expressions of autism can each have ADHD.

> on stimulants ADHD people feel relaxed and normal, bringing them down from hyperactivity and allowing them to focus on their life.

Stimulants still help me regulate my sleep cycle and focus, but I don't think I experience hyperactivity from not being on them. (anymore at least; when I was younger I almost couldn't sleep without melatonin. That resolved itself before I ever touched stimulants, though.)

--

I have heard of people with undiagnosed ADHD self-medicating with meth. Slightly different than people without ADHD using stimulants recreationally. I personally hope to never touch meth because I heard it can ruin one's relationship with other stimulants, and I don't want my medication to become any sort of recreational thing because I need to depend on it and not seek highs, but I feel like self-medication can be perfectly valid if someone knows what they are doing. Big if though.

adastra22 12 hours ago [-]
My blanket statement was perhaps too broad. There are less than 10% of ADHD people whom do not demonstrate the paradoxical response to stimulants. That said, the percentage of misdiagnosis is at least that high, which makes one wonder. Mild bipolar is often misdiagnosed as ADHD, for example, and often discovered exactly because stimulants don't work as expected.

I missed on first read that you said the stimulants only had that high for the first few weeks though. That sounds different from what I understand to be the neurotypical response.

> Stimulants still help me regulate my sleep cycle and focus, but I don't think I experience hyperactivity from not being on them.

You may have the distracted variation rather than hyperactive.

LoganDark 6 hours ago [-]
> You may have the distracted variation rather than hyperactive.

Well, I do have a dissociative disorder. Though I'm fairly sure I would be ADHD combined type, because I do have extremely hyperactive moments.

By the way, "the distracted variation" is called inattentive.

idiotsecant 18 hours ago [-]
Yes. Some brains react to some stimulants differently. That's the whole reason ADHD can be treated with Adderall.
astrange 17 hours ago [-]
This isn't true, it affects everyone the same way. But you could say the optimal dosage is different for different people.

I think people just like saying this because they're afraid stimulants will get banned otherwise.

Arcanum-XIII 11 hours ago [-]
I’ve seen friends with stimulant and can say with full confidence they are not reacting to them the way I am. They’re « high », ideas everywhere and nowhere, acting like their overstimulated, full of energy… when I’m quieter, energy level normal, can think at one thing at a time without switching… and sleeping under the effect is not an issue. I a have great nap.

So no. Maybe if I try a récréative drug will I have my adhd multiplied, but here it’s not. I think it should have been fun while younger discovering that amphetamine could quiet me when everyone was dancing under the influence.

It’s not perfect. No medication are. If you abuse it, take it without need… yeah it can be abused. Don’t try heart medication either. Or lithium for kicks. Or…

hirvi74 7 hours ago [-]
> I’ve seen friends with stimulant and can say with full confidence they are not reacting to them the way I am.

That means very little. Do you think all people react the same way to all medications? If someone takes an SSRI and it doesn't work, then does that mean they do not have depression, anxiety, or whatever the medication is indicated for? Do opioids only work for people with chronic pain?

As someone with ADHD, it's extremely common for people with ADHD to think they are some sort of rare subspecies of humans where everything different in their life is due to ADHD. In all aspects of life, people with ADHD are far closer to normal than they might want to believe. It's why people even doubt the existence of ADHD at times. I've yet to see anyone seriously doubt the existence of Schizophrenia, for example.

wafflemaker 13 hours ago [-]
All drugs affect everyone differently. Something that's ok with you can literally kill someone else - simple example - smoking weed with someone that has some lung disease.

That's why just having them illegal makes them 100x more dangerous. Through less knowledge among users, no guidance on packaging and difficult to identify the substance if someone had to be taken to the hospital.

idiotsecant 8 hours ago [-]
That's wildly inaccurate. A brain is a complex system with emergent properties that result in us. The basic effect is an increase in Norepinephrine interactions but the effect that has on people with ADHD is obviously very different.

It's like saying that engines with fuel and engines with no fuel respond the same way to adding fuel: it increases the length of time they will run.

Stop adding fuel and the resulting system behaviour will be quite different.

hirvi74 6 hours ago [-]
> The basic effect is an increase in Norepinephrine interactions but the effect that has on people with ADHD is obviously very different.

I've heard it described as a difference in magnitude. If a person with ADHD has an arbitrary "focus" score of 5/10, and a normal person has a focus score of 8/10. If a stimulant brings them both up to a score of 9/10, then the effects may appear more noticeable in the ADHD person because a 4 point jump is typically far more apparent than a 1 point jump.

LoganDark 12 hours ago [-]
> This isn't true, it affects everyone the same way.

Adderall causes me to be essentially unable to move or function. When I tried it, I was very hungry but I couldn't get myself out of bed to get food so I had to sleep it off! Pure dextroamphetamine works a treat for me though.

lazide 12 hours ago [-]
Literally not true. There are clear, reproducible, and obvious differences in brain chemistry between people.
bratwurst3000 12 hours ago [-]
this is true. Regular people get hyperfocus and adhd people get focus. real adhd is a neurologic disorder. its an instability in the flow of dopamin. so adderall puts dopamin flow on 200% and suddenly there is a steady flow for adhd people.

there are maybe 10% of people getting not focused and awake of adderal.

But "adhd brain reacts different then regular brain" is not true. For both its 20x dopamin release in 8 hours.

hnthrowaway847 20 hours ago [-]
I wouldn’t be surprised if this study were funded by some pharmaceutical lobbying shell organization.

I was on various forms of prescribed amphetimines for years and developed paranoia. It took me a few years to somewhat recover. My family has PTSD about that period of my life. I can’t think or communicate well anymore. Fuck that industry.

neuronexmachina 20 hours ago [-]
> I wouldn’t be surprised if this study were funded by some pharmaceutical lobbying shell organization.

Funding info is at the bottom of the article, the project was primarily funded by the Swedish government.

vbril 19 hours ago [-]
Also in that section:

> LZ is supported by ìShizu Matsumuraîs Donation (2024-02228) and KI Research Grants (024-02570). LL was supported by the Swedish Heart-Lung Foundation (20230452), the Söderström König Foundation, and Fredrik och Ingrid Thurings Stiftelse. BD was supported by a grant from the American Foundation for Suicide Prevention (AFSP). SC, National Institute for Health and Care Research (NIHR) research professor (NIHR303122), is funded by the NIHR for this research project.

It may be none of them. It may be all of them. There could be corruption. There could be subtle manipulation. You have no idea how much money there is in the industry. They make things happen.

Some in the medical profession believe that these abused drugs are safe for their patients. Others know better but they still prescribe them. Some pharmacists will tell you that they’re good for your brain because they increase blood flow, because that’s what they’ve been sold by the reps and the studies they’re fed.

intended 18 hours ago [-]
The fear over a paper, which can be studied and evaluated, is much higher than it need be. It would be something else if it were a media release, advertisement, or an actual compound being lauded.
astrange 17 hours ago [-]
It doesn't matter who funds a study if it's properly designed. You see this kind of dismissal on /r/science all the time and it's always just evidence that they're not qualified to actually read the study.
shlant 10 hours ago [-]
> You see this kind of dismissal on /r/science all the time and it's always just evidence that they're not qualified to actually read the study. reply

In my experience it's more because the conclusions butt up against the persons personal beliefs or experiences (like OP's)

nickff 14 hours ago [-]
The only thing more popular (on those/these forums) than shallow dismissal is piling on (i.e. the recent Coldplay episode).
will_e 13 hours ago [-]
Respectfully disagree.

I knew someone that worked for the tobacco industry where they had labs that constantly were looking for reasons that tobacco was good for you. It meets your qualifications for properly designed studies, but it was purely about trying to convince convinced others that a known addictive substance that caused emphysema and lung cancer was beneficial to your health.

Something similar happened in the weed industry, though it it’s proponents were initially just people that wanted pot to be free for anyone to grow, and then it got taken over by capitalists that didn’t mind using massive amounts of energy to fund vertical gardening, or genetically modify yeast to create THC, or to genetically modify the plant itself to produce an untested derivative of it that would meet the qualifications for hemp products, and then peddle it to teenagers at massive doses without control, pairing it with sugar-free sweeteners and causing serious health problems like uncontrollable vomit coughing, basically inventing a new disease from scratch.

astrange 11 hours ago [-]
> I knew someone that worked for the tobacco industry where they had labs that constantly were looking for reasons that tobacco was good for you.

If you're implying publication bias, that's addressed by preregistration, though you either have to be careful about looking it up or else rely on meta-analysis.

Otherwise if they're publishing true results then there you go. Nicotine does have some benefits; it's basically the only effective nootropic and it's pretty effective for schizophrenia which is why almost all schizophrenic people are smokers. Of course the problem is it's super addictive and all the ways of taking it give you cancer.

nicholta 12 hours ago [-]
> convince convinced

You probably didn’t mean to add “convinced”.

https://truthinitiative.org/research-resources/tobacco-indus...

https://pmc.ncbi.nlm.nih.gov/articles/PMC2564674/#:~:text=In...

> massive amounts of energy to fund vertical gardening

You probably instead meant “massive amounts of energy in vertical gardening”.

https://www.nature.com/articles/s41893-021-00691-w

https://pmc.ncbi.nlm.nih.gov/articles/PMC8349047/#:~:text=Ho...

bawolff 17 hours ago [-]
Afaict the study was not looking at the risk of that type of side effects.

In any case, paranoia is a known potential (but rare) side effect, its not like pharma companies were keeping this a secret.

shlant 10 hours ago [-]
"I experienced negative side effects so the science must be bought and paid for"
99_00 14 hours ago [-]
All abuse is bad. Some abuses are worse than others.

What abuse are they seeing with adderall? What I hear in casual conversations is that people are abusing it to learn things. Is that what the DEA was seeing too?

hirvi74 6 hours ago [-]
> What abuse are they seeing with adderall?

Probably accounts that were similar to these:

https://www.reddit.com/r/StopSpeeding/

graemep 13 hours ago [-]
Yes, it is most commonly used a study drug.

It is a strong stimulant (more like cocaine than like coffee) and potentially addictive so potentially dangerous and requires medical supervision.

it is a formulation of amphetamine.

notfromhere 9 hours ago [-]
You aren’t really going to get addicted to therapeutic doses. Recreational doses are like 5-10x what a doctor would prescribe, with restrictive laws in the U.S. you can only get a months supply at a time.

Would be pretty dumb to use your months dosage for 3 days of partying

graemep 3 hours ago [-]
The question was "what abuse are they seeing with Adderral?". Abuse is mostly going to involve illegal supplies and illegal use.

> Would be pretty dumb to use your months dosage for 3 days of partying

It would be, but people can be pretty stupid. I know personally of a case where kids were sharing their doses.

adastra22 12 hours ago [-]
I didn't realize studying was a crime.
graemep 3 hours ago [-]
Using controlled substances to study is a crime. Working is not a crime either, but using cocaine to be able to work harder is a crime.
unethical_ban 22 hours ago [-]
You're right, and the situation is a harm to those who need adderall. Besides, adderall is not nearly as dangerous as Opiods. Whoopty-doo if it's diet Coke. This is why, even though I don't like Adderall's side effects for my ADHD and don't use it often, I keep the prescription, because fuck the government trying to squeeze pharmacists and doctors.
LoganDark 12 hours ago [-]
Yep. No matter how long I've been taking my ADHD meds, I can just stop them at any time. I'll sleep for a while (I think my record is 25 hours of sleep), but that's it. No life-threatening withdrawals. No panic. No pain. Safer than any opioid (except perhaps naloxone?).
elcritch 23 hours ago [-]
I think of this stuff when folks say “trust the science!”. It’s all trust the science until that science conflicts with some broader agenda of a federal agency or a doctor’s whims about risks to their license.

Medicine really has a bad problem with groupthink. To get the best healthcare you have to both trust physicians and be critical of them.

Then the DEA seems to consider stimulants as a moral failing.

I’ve been off Concerta for 3-4 years now because it was so difficult to keep my productivity up when the pharmacies near me ran out due to the unpublished extra-legal DEA caps on stimulants.

Luckily even have been on Concerta has helped me learn how to manage my ADHD a bit better. It also gave me the chance to heal some of the worst traumas due to undiagnosed ADHD.

graemep 12 hours ago [-]
I think "trust the science" is a stupid slogan anyway. Not all science is equally well proven. Who represents the "science" when scientific opinion i divided? Even when there is a consensus there are plenty of examples when a strong consensus has been wrong.

The end result is that i tends to make the public regard science as something that they are told by experts, so then it becomes a matter of which experts they trust. This ultimately undermines trust in science because some expert opinions turn out to be wrong.

We really need better science communication, which will not happen when the media want sensation, politicians want spin, and the public believe either the media or ChatGPT or some random nutcase on Tiktok.

adastra22 12 hours ago [-]
"Trust the science" is anti-science. The whole point of science is that you don't have to "trust" it.
graemep 3 hours ago [-]
You need to trust the data, of course, and the process is carried out honestly.

Non-specialists in any field cannot understand everything, but I think good communication could still do a lot of effective explaining of evidence.

pessimizer 22 hours ago [-]
[flagged]
elcritch 20 hours ago [-]
> (which has no physical diagnosis criteria, just a subjective checklist),

An ADHD diagnosis is not just subjective checklist. There's little regulation, but in order to get federal ADA accommodations in gradschool I had to get a diagnosis that took weeks. First I had a professional IQ exam which took 6 hours and highlighted that certain sub-scores were low indicative of ADHD, in particular working memory. Then there was testing with reflexes and attention regulation via computer testing. Finally there wad several counseling sessions reviewing childhood patterns and history, life and work impacts, etc.

Also you can scan ADHD brains with fMRI and see the differences.

> Why in the world would anybody be motivated to suppress the widespread usage of adderall for ADHD

Similar reasons as to why you're throwing shade at ADHD diagnosis criteria and hinting at that ADHD is fake. Maybe it's just ableism or puritanical views against the idea of stimulants.

Perhaps moral aspersions on a group of people whose symptoms look like they're just lazy. This is the most common in my experience.

> Who would be bribing them?

Some of the worse oppressors are those who do it because they believe they're doing it for your good. Perhaps beaurocrats enjoying the power in their fiefdom.

> Do you think that the DEA gets to make decisions about drug policy,

Well yes, especially before the Chevron doctrine was overturned recently by the Supreme Court [1]. Even Congress doesn't know what the DEA set their quotas for schedule 2 drugs at [2].

> or that they all belong to some secret anti-adderall church?

Heh, you'd be surprised [3].

1: https://www.scotusblog.com/2024/06/supreme-court-strikes-dow... 2: https://oversight.house.gov/wp-content/uploads/2024/05/Lette... 3: https://www.bunkhistory.org/resources/the-cult-of-j-edgar-ho...

zdragnar 18 hours ago [-]
> Maybe it's just ableism or puritanical views against the idea of stimulants

It was very widely abused in my college days. There was also a (IMHO justified) concern over whether it was being over-prescribed as a way to deal with problematic behavior in children, rather than actually putting in the effort as a parent or medical professional to get to the root of the issue.

With that said, I do know people who genuinely have either ADD or ADHD, and who struggle to function without some form of pharmacological help in addition to therapy. Limiting their access to stop others from abusing it is unethical, whatever a cost/ benefit analysis might say.

galangalalgol 18 hours ago [-]
I found the stronger stimulants robbed me of joy in life, I became very productive though. A good worker. Wellbutrin prevents my catastrophic thinking and feelings of being overwhelmed. I still miss meetings and procrastinate, but I also still whistle a tune while watching the sunlight pass through the leaves of a tree. That stopped on the strong stuff. All that anectdata aside, some people need the strong stuff, but many more are using it to fit perfectly into a world that no one should have to fit into. Antidepressants cause a similar problem, where people put up with situations they shouldn't. Just because the stimulants allow you to handle a certain amount of stress or work, doesn't mean you should.
cyberax 18 hours ago [-]
> There's little regulation, but in order to get federal ADA accommodations in gradschool I had to get a diagnosis that took weeks.

That's because you wanted to get something from via the ADA. If you just go to a website, do a questionnaire with _very_ leading questions (that you can do anonymously several times to make sure you get the desired result), book a meeting, and then you can walk out of your meeting with a prescription. Pending a mandatory drugs test, of course.

Ask me how I know. And I actually _do_ have clinically diagnosed ADHD, so I didn't need to fake anything.

gdbsjjdn 21 hours ago [-]
There's absolutely people who don't believe in any psychiatric medication, either for religious or just pseudo-scientific reasons. Look at how harshly the United States has treated marijuana users compared to smokers and alcoholics. There's moral and social judgement associated with different substances which is contingent on history and not based in fact.
smohare 20 hours ago [-]
[dead]
abtinf 21 hours ago [-]
> she’s actually really reasonable and I like her

From what you’ve written, she didn’t treat your actual condition and thus put you through needless suffering and placed your health at risk.

llbbdd 1 days ago [-]
Which online doctor? I've had the same frustrating experience with "real" psychiatrists but didn't know you could arbitrage the prescription like that.
baby_souffle 1 days ago [-]
> Which online doctor? I've had the same frustrating experience with "real" psychiatrists but didn't know you could arbitrage the prescription like that.

There are a few providers out there. The DEA is cracking down on them (they call them "pill mills") and that crackdown is - depending on who you ask - partially/fully responsible for the stimulant shortages the past few years. The /r/ADHD sub has some good discussion(s) from time to time on the latest action(s) taken by the DEA.

---

When I was seeing medical help to confirm or refine my suspected/self-diagnosed ADHD, it was a _pain_ to jump through all the hoops. I was nervous getting my first Rx filled but oh my god was it a night and day difference. Within 45 min, it was _clear_ that the medication was working ... exactly how it's supposed to for people with ADHD. That "validation" was my prize for attempting to navigate the american health care system.

If I could have replaced dozens of hours / 6+ months of phone-tag/paperwork/assessments for a monthly subscription and a 30 min video call, I'd have jumped at the chance.

skissane 20 hours ago [-]
> and that crackdown is - depending on who you ask - partially/fully responsible for the stimulant shortages the past few years.

Australia has been experiencing psychostimulant shortages in recent years, but they haven’t been due to the DEA (or Australian equivalent thereof-most of the DEA’s functions are state government responsibilities in Australia), they’ve been explained as due to manufacturing issues and growing demand - https://www1.racgp.org.au/newsgp/clinical/further-adhd-medic... - while I totally believe the US is facing additional issues due to its own regulatory regime, if Australia is having supply issues independent of that factor, why wouldn’t the US too?

Since controlled substances prescribing is a state issue in Australia, each state has its own policies - but I know my state (NSW) has been loosening regulation not tightening it - https://www1.racgp.org.au/newsgp/clinical/first-phase-of-gp-...

Maxious 17 hours ago [-]
The shortages are due to the DEA, you can read the documents on the TGA FOI website what "manufacturing issues" really means https://www.reddit.com/r/ausadhd/comments/1mhdmgs/foi_250162...
skissane 16 hours ago [-]
Since last year, lisdexamfetamine sold in Australia has been manufactured in Germany (API) and Ireland (packaging). The DEA has zero jurisdiction over a drug manufactured in Germany/Ireland and then exported from there to Australia–US quotas do not apply, the relevant quotas are the German/Irish/Australian quotas set by their respective governments (which governments appear to take a much more flexible and responsive approach to doing so than the DEA does). Takeda said that GMP issues in the Irish plant were causing supply problems – and I don't see any reason to disbelieve them; GMP is a TGA/FDA/EMA issue not something the DEA has any authority over.

The biggest cause of Australia's lisdexamfetamine supply issues isn't the DEA, it is patent law – the US patent expired in 2023, the Australian patent doesn't expire until 2028, which gives Takeda a continuing near-monopoly on lisdexamfetamine in the Australian market – so if Takeda is having problems meeting the growing demand, it is legally very difficult for other firms to step in. The TGA did for a period allow emergency parallel import – but I don't know if that included generics, and my own experience was it wasn't clear how to even access it – my impression is that for most patients it was more of a theoretical allowance than something practically helpful to them.

I think the biggest thing the DEA is doing here is damaging the US' own pharmaceutical manufacturing industry by pushing controlled substances production out of the US and into friendlier countries in Europe and Asia. The DEA can't cause any lasting issues with controlled substances availability in Australia because their jurisdiction is legally limited to the United States. Even if we suppose the DEA may have temporarily contributed to supply issues in Australia – surely equal blame lies at Takeda for being too slow at moving manufacturing out of the US.

wahern 15 hours ago [-]
That document is quite confusing, at least when skimming it. There's actually a bullet point on one page that says, "The current interruption to supply is NOT related to any DEA production quotas or restrictions on API."

That may be technically true, or perhaps it's just a false assertion included in the document dump. But AFAIU the issue is that the DEA tightly controls production and distribution of bulk amphetamines. There's just not a global quota, but per manufacturer quotas as well as requirements for allocation for each product. For example, the DEA sets a supply quota for 40mg pill production separate from a 50mg prescription. So if a particular manufacturers supply for 40mg pills is exhausted but they have tons for 50mg pills, too bad unless and until you go through an onerous process with the DEA to reallocate. It gets even worse across manufacturers. If manufacturer A has to shut down their production facility for some reason, manufacturers B and C can't easily pick up the slack. That's because reallocation of amphetamine supply to another manufacturer not only requires navigating a bureaucracy (that the DEA may very well slow walk given their present attitude), but it requires manufacturer A to voluntarily relinquish their quota, which they never do as there's zero benefit to them.

TL;DR: Technically global supply is more than adequate, but DEA rules, which effectively operate extraterritorially, create huge distribution problems. So the DEA can technically claim quotas aren't the problem, but that's at best highly misleading. If manufacturer A has to shutdown production (which, from the document, seems to have been one of the issues with Takeda), the end result is less production even though other manufacturers could theoretically pick up the slack.

skissane 15 hours ago [-]
> There's just not a global quota,

There is no global quota. There are national quotas set by every country's government. US law nominates the DEA as the agency which does that for the US. Each country's government reports their national quotas to a UN agency (the INCB), but the UN agency has no power over them – at the very worst, they might criticise your quotas, but probably not even that; and more powerful countries (not just the US, even middle powers like Australia) can ignore what UN bureaucrats think with impunity – some poor developing country it may be a different story, especially if aid decisions are tied to getting a "good report card" from those bureaucracies.

And while for the DEA, setting these quotas is part of some grand moral/ideological crusade, for EU governments and Australia it is just technocratic paperwork – so of course those governments approach the issue much more reasonably than the DEA does.

> but DEA rules, which effectively operate extraterritorially, create huge distribution problems.

I don't see how they do. Lisdexamfetamine sold in Australia is manufactured by Takeda in Germany and Ireland. The DEA lacks jurisdiction over what a Japanese company does in EU and Australia. Although the drug was originally developed in the US, the Australian patent is currently owned by the Japanese parent company, not its American subsidiary, while the American subsidiary owns the "Vyvanse" trademark in Australia; anyway, DEA jurisdiction is based on manufacture in the US or US import/export, not country of development or IP ownership.

> If manufacturer A has to shutdown production (which, from the document, seems to have been one of the issues with Takeda), the end result is less production even though other manufacturers could theoretically pick up the slack.

In Australia's case they can't because lisdexamfetamine is still under patent, so other manufacturers are illegal – not because of the DEA, because Takeda will sue them. Takeda could license other manufacturers voluntarily, but why would they do that? That might be great for patients, but probably not so great for their shareholders.

I'm no fan of the DEA, but blaming the DEA for something that happens in Australia appeals to people emotionally even if it isn't true, whereas blaming patent law and the business decisions of a Japanese corporation is more truthful but less emotionally satisfying.

adastra22 12 hours ago [-]
Circle is pretty easy to work with.
SubmarineClub 1 days ago [-]
Yeah, it's ridiculous. I've been taking medication for ADHD since the 3rd grade. Why in the good goddamn should I have to go in EVERY month for a refill for a medication I've been taking for over 20 years.
hombre_fatal 1 days ago [-]
I was on a 90 day prescription for ten years (vyvanse) when I told my doctor I was traveling abroad.

Insurance doesn’t cover 90 day bottles so it was $300/mo but worth it.

Nowadays there’s generic Vyvanse which is much cheaper so it probably makes 90 day prescriptions financially viable?

I just moved back to the US and had to find a new local doctor who gives me 30 day scripts so I haven’t asked about 90 day yet. I imagine these pill mills are pretty stingy. It takes a lot of time and calling around to find docs who don’t treat you like a fiend in some way.

But we need to count our blessings. People on pain killers need to put up with crazy shit like getting randomly summoned to the office so they can count your remaining pills.

1659447091 23 hours ago [-]
> I just moved back to the US and had to find a new local doctor who gives me 30 day scripts

You may have difficultly getting a 90 day, both the doc and pharmacist have to agree to do it - 3x30 day with 'fill on dates' is more likely.

When I had a long out of town trip I was able to get a 60 day script. When I came back the doc sent 60 day script again but the pharmacist wouldn't fill it and only allowed it because what ever code/note the doc added about long term travel. That was self pay so I wasn't even a risk for selling it. Some states won't allow more than 3x30 day.

I am surprised you got name brand vyvanse for $300/month, generic is ~$250/month without coupons/discount cards

hombre_fatal 20 hours ago [-]
Interesting. I got a 90-day bottle from a doc in my hometown until 2022. That's when I moved back to Texas but didn't want to drive all the way to my hometown anymore to see that doc.

Now I go to some "psychiatrist" pill mill where they made me take a BS $200 computer test to diagnose me with ADHD (CYA even though I've been taking this drug for 16 years) and they ask me the same goofy questions every televisit (probably more CYA).

Yeah, it was $1000-1200 for 90 pills of Vyvanse all that time. GoodRX only knocked it down $200 or so. And the website coupon only applies to 30-day.

Now with insurance, Vyvanse is $100 for 30 while generic is $10.

com2kid 16 hours ago [-]
Mail order pharmacies (though insurance companies) are more likely to fill a 90 day stimulant script in my experience, solely because they really want to send out 90 day supplies for everything for whatever reason.

I don't trust the post office enough to bother.

organsnyder 1 hours ago [-]
I get 84-day supplies of Concerta through ExpressScripts. They send them signature-required (unlike other Rxs I get from them). It's a bit of a pain—I usually end up having to go to the post office to pick it up—but it's an order of magnitude easier than needing to get a refill at a retail pharmacy every month.
nerdsniper 21 hours ago [-]
ExpressScripts pharmacy basically mandates 90-day Rx and will mail them to your home. Excellent for people who suffer from ADHD.
notfromhere 9 hours ago [-]
I don’t understand how this works when legally in many states they can only dispense a 30 day supply
adastra22 12 hours ago [-]
You can get $100/mo generic Vyvanse from Walgreens with GoodRx.
sneak 15 hours ago [-]
I regularly travel for 4-6 months at a time and I have several prescriptions that I must take daily for years/decades and they’re not even controlled substances. Getting >60 day supplies is like pulling teeth.
0cf8612b2e1e 24 hours ago [-]
Not to make light of your situation, but women taking birth control have been in this situation forever.

It is only recently that over the counter birth control and/or three month allotments have been available.

aidenn0 18 hours ago [-]
You have to go into a doctor every month and get a new paper prescription for hormonal birth control? In the US? 20 years ago, my wife was able to do an electronic prescription, and it automatically refilled at the pharmacy every month.

For stimulants, they can't do an electronic refill, so I literally had to go to my doctor, get a paper prescription, then drop it off at the pharmacy, then come back a few days later (because it's usually backordered) every 30 days.

Some doctors would write 3 prescriptions with a "not before" date, but others were not willing to do so.

hilux 15 hours ago [-]
Definitely for Adderall, and possibly for birth control, the regulations vary greatly by state.

Of course, it wouldn't surprise me if hormonal birth control were to be Federally banned before this White House is done.

elzbardico 24 hours ago [-]
And the same people who fight against abortion were the same ones who fought tooth and nail to make birth control hard to access. Go figure!
aianus 23 hours ago [-]
Who, the AMA? Canada is super pro abortion and definitely didn't have OTC BC when I was in college.
qingcharles 22 hours ago [-]
* In the USA
godelski 18 hours ago [-]
Or how every month the brand changes or you get a slight variation or they give you half the pills but double the dosage, where all of these things requires a consultation with the pharmacist and it's always a 5 second conversation: "This again?" "yep. Any question?" "no" "Have a nice day"

For the last few years I think the actual medication I take changes every month. Is it just amphetamine? Just dextroamphetamine? Both (like Adderall)? These aren't the same and effectiveness is at different dosages. And then I got to figure out how to adjust to the specific version and batch as the manufacturing tolerance is within sensitivity range. Not to mention food interactions. And most of this is a solvable problem!

FollowingTheDao 1 days ago [-]
It’s the same thing for me and Klonopin and my psychosis. The Klonopin is the only thing that stops my psychosis yet they only give me 20 tablets at a time and since I’m homeless and driving around it’s really hard for me to get a new doctor and a new prescription. I’ve been taking it as needed for over nine years and they still can’t get it through their thick heads that I’m not gonna abuse it.
al_borland 1 days ago [-]
I was in the hospital after surgery and was being treated like an addict who was just there to get pills. It was madness. Like I willed by appendix to burst so I could get a little morphine or a xanax, that makes total sense.
edm0nd 1 days ago [-]
i'm curious, are you homeless because of your psychosis?
FollowingTheDao 1 days ago [-]
Yes, I have schizoaffective disorder, Asperger‘s, and myofacial pain disorder they put me on disability about 22 years ago. I used to be able to handle living in apartments on my disability, but rent has gotten crazy so I ended up living in a van which actually ended up being kind of OK.

I have episodic psychosis. It’s not something that happens every day. And I’m seeming to manage it with some genetic and nutritional understanding I have of myself so it’s not that much of a problem anymore. I just have to be careful with Covid because both times I had Covid I had the worst psychosis of my life.

All my disorders are mostly due to a CBS Deficiency.

quibono 21 hours ago [-]
I hope things get better, all the best to you
1 days ago [-]
hinkley 1 days ago [-]
At least with time release now there's less of a problem of having to sneak to the nurse's office every day at lunch to take medication and have that brat from third period ask you why you're in the nurse's office and what you're taking.
sekh60 1 days ago [-]
Since you may sell them if you get them more frequently. Now here's a pack of 30.
baby_souffle 1 days ago [-]
> Since you may sell them if you get them more frequently. Now here's a pack of 30.

But it's already a C/II class medication so the name on the Rx has to match the name on the photo ID and the pharmacy has to keep the records / there are rules for how often C/II medications can be dispensed. If you have a 30d Rx, the soonest you can come back with an Rx for that same medication is ~25d.

Regardless, does it matter if I have to re-fill every 30d or every 90d? As long as I'm only in there every 80d to get my 90d supply topped up, how is that any different from a 2d Rx or a 30d Rx being filled every 1d or every 25d?

sekh60 1 days ago [-]
Sorry, I was being a little tongue in cheek. My wife is on Adderall for ADHD and the renewal thing is frustrating for sure. Our pharmacy would only let us refill her prescription the day of until our psychiatrist wrote one that said 30 tablets over 25 days. So I get the frustration, I just find it kinda silly that there's all these overblown controls, and then they give a "large" amount when all is said and done. Kinda like security theatre to me, it's just dumb and punishes people that already have a hard time keeping up on appointments and paperwork due to their health.
16 hours ago [-]
insane_dreamer 6 hours ago [-]
I'm pretty ignorant of how all this works, never having had to take medication, so I apologize in advance if this comes off the wrong way. But isn't the reticence of doctors a result of the over-prescription of opioids leading to the very serious opioid crisis?

Not sure what the correct solution is, but on the one hand we don't want doctors to overprescribe, but on the other hand we want doctors to liberally prescribe without re-checks to make it easier for those who need it to get their meds. That would seem to put providers in a bind.

mrandish 1 days ago [-]
Yep. For a while there I was able to work with my doctor and pharmacist to get Adderall from my Kaiser health plan pharmacy in 90 day increments but that stopped with the med shortage. Now that the shortage is over they won't do it again. Neither my doctor nor pharmacist know if this is an actual regulation change due to the shortage or just a health plan policy change. If it's a reg change, it'll never go away. If it's a health plan policy, maybe there's hope.

The problem is that Schedule 3 meds can't be shipped and must be picked up in person at the pharmacy (where driver's license # must be entered in an extra procedure not required for other meds). Health plan pharmacies have lines, don't have drug store hours and aren't on every corner. The combo of "in person pickup" + "30 day limit", which were enacted by different people at different times for different reasons creates life disruption and a massive waste of time, energy and money (we're all paying for this in increased prices). I've been on these same meds like clockwork for decades. In such cases they should relax either "in person pickup" or "30 day limit" but, we all know, it won't happen.

And if I need to travel on a trip or vacation for a week or two, with the 30-day limit there's a 25-50% chance I'll run out of meds and getting special dispensation to refill early requires contacting and coordinating the doctor and pharmacist in a non-automated, out-of-band loop. There's a two day automatic grace period to account for the pharmacy being closed on weekends but when my 30-day window falls on a weekend, I now have to coordinate pickup on an exact day - like I don't have a life outside of this bullshit. All just to get the meds which help me function normally.

Being forced to deal with all this for years has made it so I understand the health plan's back-end IT system capabilities (and lack thereof) better than most of their employees. It's still inconvenient for me but I'm one of the lucky ones. My meds are dialed-in and working, I have a flexible schedule and can parse bureaucratic systems. I got diagnosed and stable on my meds back before every ADHD patient was automatically considered a suspected drug abuser - which is ironic because I've never even had a drink, much less used illicit drugs (ADHD and alcohol/rec drugs tend not to mix well and I was diagnosed as a child). Which makes it meta-ironic I'm required to have a drug screen blood test every year to verify I am taking my prescribed drugs and not selling them - as if I got diagnosed in 4th grade as the ultimate long con knowing these meds would become street drugs worth a buck a pill decades later. I can't imagine a new ADHD patient still struggling to find the right med and dosage trying to figure all this out without giving up.

dev1ycan 22 hours ago [-]
This is why I stopped, when I was starting doing internship at my job I was earning "1000", to go to the psychiatrist to get a prescription it'd cost 250, and the 1 month of pills would cost another 250, half my salary in this bullshit... on top of having to go every month which on itself is a burden.

Nice joke really, even after I started earning more after the internship period ended it was just too annoying so I stopped entirely, instead since it was work from home I literally spent 24/7 trying to finish my work so basically, "working" (if you have adhd you know that while you procrastinate, you aren't actually "relaxed" enough to go play games or whatever so it'd basically still being in work mode mentally) 16 hours a day.

justinator 19 hours ago [-]
Are we talking Adderall? I would be amazed if it still works at all on you. It seems research is showing that stimulants work for ADHD, until it doesn't. If it is Adderall, do you cycle on and off, or what's your protocol? (curious is all)
astrange 17 hours ago [-]
If it stops working, take magnesium supplements.

(Glycinate or threonate, not oxide.)

terminalshort 15 hours ago [-]
It's worked for me for 20 years
46 minutes ago [-]
hinkley 1 days ago [-]
I've heard it argued that ADHD diagnoses should come with a social worker.

Every time I realize it's Friday and I'm gonna run out of medication because I forgot to call in the refill I think about that. Three day weekends are the worst.

One workaround I've heard is that you order every 30 days even if you forgot to take your pills one or two times. Any surplus pills go into an old bottle you hide in the back of a drawer. You only ever withdraw when you've fucked up your re-order.

pesus 1 days ago [-]
I'm of course not recommending or condoning this, but with instant release it's definitely possible to also get a higher dosage than you actually need and cut the pills up to take the lower dosage you need, and stash the rest to build up a surplus.

Or so I've heard.

hinkley 22 hours ago [-]
The extended release means you only have to remember to take the medication once a day instead of twice.

What we need is for these pills to be compounded the way they do opioids: the wax granules are arranged to attempt to keep you from getting a burst dose by crushing the pills. The same process that makes crushing work makes splitting not work. So if you make split pills still time release, no problem.

But not for saving pills. Some people are exquisitely sensitive to these medications and you need 25mg per day but it only comes in multiples of 10 up to 50. So you’d like to split a 50 and take 1/2 pill per day. Also the 40mg often costs only 30-40% more than the 20.

xlii 15 hours ago [-]
One thing to keep in mind that methylphenidate is contextual and metabolic related.

Hard focus work could make it work shorter, but also some have metabolism so quick that they burn through medication. That's controlled by doctors so no worries, but I know people who take IR forms every 2 hours, and for those XR forms don't work at all (as it's like 2 complete cycles with all side effects).

impure-aqua 17 hours ago [-]
Vyvanse is biochemically rate-limited rather than mechanically, so it is ideal for this; there is not really an alteration to the absorption properties no matter what you do.
hsod 21 hours ago [-]
When I was taking ADHD stimulants I had my core dose (long release) and then a “top-up” dose (5mg instant release) every month. The guy who prescribed me initially may have been a bit of a quack (I had to leave him because my insurance dropped him) but when I switched to a super mainstream doctor she had no problem continuing it.
lazide 23 hours ago [-]
And yet, the exact same song and dance is required for extended release and prodrugs like Vyvanse.
baby_souffle 1 days ago [-]
> I've heard it argued that ADHD diagnoses should come with a social worker.

I know a few people with crippling ADHD that have managed to hire a "life coach" of sorts to help. Takes a bit of screening to find somebody that knows ADHD and how to help with it versus the more generic/useless skills you probably first thought of when you read 'life coach' :).

> Every time I realize it's Friday and I'm gonna run out of medication because I forgot to call in the refill I think about that.

We all have to develop our own coping / survival tools and I'm sure you've heard "put it in your calendar" before. I've had really good luck with an electronic pill dispenser. They can get pricey but for ~ $100 you can get a device that'll keep track of 30 doses and even push alerts to your phone if you've missed a scheduled dose or are down to your last few. You can also DIY; micro controllers and eInk display panels are _cheap_ now. My current iteration is wired into my Home Automation system and that affords me several opportunities to nudge me towards medication when i'd have otherwise forgotten.

> One workaround I've heard is that you order every 30 days even if you forgot to take your pills one or two times. Any surplus pills go into an old bottle you hide in the back of a drawer. You only ever withdraw when you've fucked up your re-order.

Yep. +1 for this. The first prescribing psych that I had clued me into this. They explicitly asked me if I wanted a bump to my Rx for the month so I could start building a buffer. I was clueless but it was explained to me that there's a bunch of timers and rules around how/when you can re-fill and you might not always have a continuous supply unless you take matters into your own hands. Years later, I now live in an area where fire season is almost year-round and you can bet that I have ~ 2 weeks supply stashed away in my "go bag".

hinkley 22 hours ago [-]
Oh yeah, and I didn’t even cover the problem of “I have eight pills left and want to go out of town for two weeks”. They will not let you refill scheduled substances ahead of time like that.
mat_b 20 hours ago [-]
You gotta start skipping a day sometimes or taking 1/2 on some days. Then you'll accumulate a reserve.
18 hours ago [-]
saaaaaam 24 hours ago [-]
Can you share a link to that pill dispenser that pushes alerts to your phone please?
baby_souffle 21 hours ago [-]
I was last researching this a few years ago and the one I had bookmarked is apparently no longer available on Amazon. Doing a quick search for electronic pill dispenser does show several, a few of which are similar in appearance to the one I had bookmarked.
eep_social 5 hours ago [-]
this is also standard practice with insulin for diabetics. though the regulations are less onerous the risk of running out is a bit worse so the incentives end up about the same.
kstrauser 18 hours ago [-]
The analogy I've given is having an asthma clinic at the top of Mt. Everest. If I could freaking get there, I probably wouldn't need it.

A friend referred me to a telehealth clinic where I could get in quickly instead of waiting for 6 months. They're dialed in to their patient care, too: I get a string of email and text reminders that I have an upcoming appointment. And contrary to some of the horror stories, my doc spent a couple of hours with me on the first appointment before coming up with a treatment plan. It wasn't a 5 minute visit where they through pills at me, but an actual genuine doctor's appointment with someone doing due diligence and customizing a care plan specific to me, with alternatives to try if my insurance didn't cover the first line of meds.

I feel so lucky that I got connected with the right people, after a series of PCP visits and a psychiatrist referral who diagnosed me as having anxiety. Oh, you think? Yeah, I'm feeling pretty anxious that my boss is annoyed at me for having all the signs and symptoms of ADHD and how it affects my work.

Life is easier now, I tell ya.

jackdoe 1 days ago [-]
> handle rejection poorly

Off-topic but recently I found out about Sensitive Rejection Dysphoria, its not officially recognized as a thing but it is in active study now, and very related to ADHD, and tbh I wish I knew about it sooner

astrange 17 hours ago [-]
It's not officially recognized because it's just something a guy with a blog made up. It has a fancy sciencey sounding name to cover up that a guy with a blog made it up.

It doesn't seem to be particularly exclusive to ADHD; to me it sounds like it's just anxiety.

Note that the guy who made it up advocates a specific medication regime for it that you probably aren't taking.

https://slatestarcodex.com/2018/08/14/ssc-survey-results-adh...

cardanome 1 days ago [-]
Yes, knowing about RSD was life changing for me.

Before I had my ADHD diagnosis, I just assumed that I have social anxiety and tried to fix it myself by giving me exposure therapy. I would force myself to seek out any social interaction regardless on how I felt.

The result was that I got worse, so much worse because I was basically trained myself to disregard my emotions. Turns out being undiagnosed with ADHD is traumatizing. I did not imagine that people hated me for being different, I never had any phobia. It wasn't "just in my head". The truth is that I am different and lots of people will instinctively hate me for being neurodivergent. I just needed to learn to deal with that.

That is why a correct diagnosis is so important. I despise that people are given generic diagnosis like depression or anxiety instead of digging deeper and trying to find out what actually causes them.

hombre_fatal 23 hours ago [-]
Dang, that sounds kinda like me though I never heard of RSD until now.

I guess it's like ADHD in that way: I thought I was just a lazy sack of shit until I found out I have a condition that I can treat with a pill. Then I could merely accept that it's not something I have control over, and I could move on.

Funnily enough no matter how great my life is nor how confident I feel, every once in a while a catastrophic fear of rejection will leap into my chest and I suddenly feel like I'm that poor terrified 15-year-old me, and I have to shake it off. I have much better tools for dealing with it now that I don't see it as part of my identity, much like I don't see myself as lazy.

Aerbil313 3 hours ago [-]
That's the weird thing about neurodivergence. I forced myself for a year to finally "come out of my shell" and socialize in the college. On the surface I succeeded, got a friend group, hanging out frequently. Nothing improved, at the end of the year I was dreading any social interaction more than ever.

Turns out I had AuDHD and I was masking (pretending to be neurotypical when around people). Can't tell you how exhausting that is. I cut off all my friends and couldn't be happier since.

Some people are simply not wired to socialize.

losthobbies 1 days ago [-]
Same as me. I think about it every day now. I’m 44 and It explains a lot of my behaviours.

I found the adhd chatter podcast very helpful

https://youtube.com/@adhd_chatter_podcast?si=Ne0isYQ2QCgIeqY...

mthoms 20 hours ago [-]
It's nothing personal but I clicked your link enthusiastically and was greeted with nothing but clickbait thumbnails.

"THIS COMMON MEDICATION IS DANGEROUS FOR ADHD WOMEN!" & "THIS STRANGE HABIT IN PREGNANCY INCREASES THE RISK OF ADHD!" are just two examples.

I'm sure it's a good podcast but I find this practice distasteful at best and absolutely abhorrent when you're directly targeting mental health patients with poor impulse control and self-regulation issues.

(I want to emphasize that I know you mean well :-) )

23 hours ago [-]
kace91 22 hours ago [-]
Funnily enough, my journey here in Spain was almost the opposite.

I didn’t know until my thirties that certain issues with executive dysfunction could be caused by adhd, as it is not a widely known disorder particularly for adults.

After I contacted a professional however, and once the relevant testing and assessment was finished, my doctor strongly recommended trying medication as part of the therapy. The whole thing took about $200 for the assessments and medication is cheap. Absolute life changer btw.

vovavili 8 hours ago [-]
This is actually less of an issue for technically inclined folks, since we can get our initial fix from the darknet using cryptocurrency, and then getting more consistent at planning and sticking to routine becomes cognitively easier. This also has the advantage of the fact that researching darknet is actually quite fun and stimulating, sort of like a difficult video game with lots of little tricks and secrets.

That's how I started my treatment, at least.

glennpratt 7 hours ago [-]
I agree, except I've been much happier with Wellbutrin. After getting through the initial insomnia a few years ago and switching to normal release, not extended, I have good focus and don't have tremors or back pain like I did with stimulants.
pcthrowaway 19 hours ago [-]
Highly relevant reading, from a psychiatrist who prescribes ADHD meds: https://slatestarcodex.com/2017/12/28/adderall-risks-much-mo...

TL;DR they believe the most responsible thing to do is to give everyone Adderall if they're seeking Adderall, with minimal gatekeeping, because the risk of not giving Adderall to someone who needs it far outweighs the concerns of giving Adderall to someone who doesn't need it.

sanderjd 7 hours ago [-]
Yeah, requiring a check in every month to keep getting a prescription always struck me as an ironic requirement when treating people with ADHD.
diob 1 days ago [-]
Yeah, the journey to stimulants for me was long and painful, with a lot of procrastination on my part. And now even having them prescribed it is a pain dealing with the bureaucratic / expensive nightmare of USA health insurance.
yesco 1 days ago [-]
I just go through GoodRx now, makes it like $20 per month for my prescription. You don't even need to make an account with them, it's like coupon you don't even need to print out. Just tell the pharmacist you are going to use GoodRx and you are done.

My work insurance seems to change all the time, and while going through GoodRx doesn't count towards my deductible, I prefer the price stability. Not fun when I'm randomly told it's $120 now at the pharmacy because my insurance doesn't cover it now for some fucking inane reason. A few phone calls can often resolve it, but it's the last thing I want to do when I'm a day away from withdrawals kicking in. Even more absurd is this is basically guaranteed to happen more than once a year, THERE IS ONLY 12 MONTHS IN A YEAR!

mh- 1 days ago [-]
GoodRx is genuinely a good deal. There's a paid offering (called Gold, I think?) that makes things cheaper, but whether it pays for itself will depend on what you're filling.
arcfour 1 days ago [-]
What does the DEA have to do with US health insurance, exactly?
gopher_space 1 days ago [-]
They get to decide how many of each pill manufacturers may produce each year, and how they’re controlled.
arcfour 23 hours ago [-]
Right, so nothing to do with insurance or our system of it.
Uehreka 4 hours ago [-]
Insurance often refuses to cover ADHD meds, so a lot of us our paying the full price. Which is garbage, and is very much to do with insurance and our system of it.
arcfour 2 hours ago [-]
That has nothing to do with the DEA though. You're conflating different concerns.
Uehreka 2 hours ago [-]
We’re mad and we have ADHD. We’re not interested in staying on topic.
Spooky23 1 days ago [-]
They issue licenses for making the drugs and getting the raw materials to make them. The process is inflexible at best and if manufacturer A hits their quota, they can’t get additional raw materials, even if manufacturer B has excess.

Like most things associated with drug criminality, the rules are stupid and capricious.

arcfour 23 hours ago [-]
And this has nothing to do with insurance, but does have to do with government bureaucracy negatively impacting people getting treatment for an illness.
dodobirdlord 18 hours ago [-]
Health insurance prior authorization policy, approved medication lists, and network pharmacy policies complicate maintaining continuous access during the DEA-imposed artificial shortage by complicating transferring prescriptions to pharmacies that have supply available and transferring prescriptions to substantially-equivalent drugs sold by different manufacturers.
Spooky23 20 hours ago [-]
Insurance adds another bureaucratic hoops that negatively impacts patient care and outcomes.
jrflowers 17 hours ago [-]
I like that you’re posting “check and mate the DEA doesn’t do health insurance” as a gotcha when nobody in this entire thread has at any point said that the DEA is directly involved in health insurance. It is like loudly claiming victory that you have established that doctors aren’t in charge of trimming the hedges in your neighborhood
arcfour 2 hours ago [-]
No, I'm pointing out that people like yourself are unable to recognize (willfully) government interference resulting in negative outcomes with the government interference you champion. Does it hurt to have this level of cognitive dissonance?

"Yes, the government is responsible for these awful things. But if it was responsible for even more things, it would be different and good, because someone told me it would!"

jrflowers 11 minutes ago [-]
> No, I'm pointing out that people like yourself are unable to recognize (willfully) government interference resulting in negative outcomes with the government interference you champion.

No you’re not. You’re not doing that at all.

You’re just posting “Hey, you know that thing nobody said? What if you believed this thing I just made up? Even though I know you did not, you would surely look pretty silly if you also came up with this wrong thing that I thought of in my head. Just picture what a buffoon you would be if you said something completely different than what you said. I am imagining you doing that and it is very pleasing to me. You look quite the fool and I quite the razor-sharp wit in this scenario that never happened but I am envisioning anyway”

It is nonsense, quite literally gibberish. “What if we had an argument and I was right and you were wrong how would that feel” isn’t an argument or a point. It is a dream that you’ve decided to volunteer unprompted that you fantasize about.

It is like someone bringing up a new pair of running shoes and you interjecting with your thoughts about the eroticism of feet.

dimal 4 hours ago [-]
Hmm. That hasn’t been my experience. Getting adderall or Ritalin was as easy as saying, “I’m having trouble concentrating.”
wordofx 1 hours ago [-]
And most people who claim to have ADHD don’t have ADHD. But apparently thinking you have ADHD makes you feel better about doing things you don’t enjoy.
flir 13 hours ago [-]
> People with ADHD are horrible at following through and handle rejection poorly

The form my GP gave me (after telling me I probably wasn't) sat in my car for six months, untouched. Went private. No regrets.

veunes 7 hours ago [-]
The system isn't built for people who need it to be a little easier
groby_b 1 days ago [-]
This doesn't even account for the perma-drama due to the artificial shortage generated by the DEA. Getting your prescription filled, if you manage to wrangle one, often requires hours of calling around which pharmacy can fill said prescription.

And you get to do that every months. And you can't get a prescription earlier, you have to wait a full month. So, essentially: Right when you're forced off your medication that helps your executive function, you need to exercise large amounts of executive function.

It's massively stupid.

totablebanjo 1 days ago [-]
The hoops I have to jump through for a prescription I’ve been on for multiple years is ridiculous. My insurance will wrongly think I’ve filled it at a CVS I sent the script to hoping they’d have it in stock and then I sometimes end up paying out of pocket because otherwise I am exhausted all day and have limited capacity to do tasks.

The meds themselves have dramatically improved my life by being more capable of getting tasks and work done. Main downside is the drop off around 8/9pm when I become really tired and unfocused.

baby_souffle 24 hours ago [-]
> Main downside is the drop off around 8/9pm when I become really tired and unfocused.

Talk to your prescribing psych about this. More, but smaller, doses throughout the day may be a way around this. Diet and changing when I medicate helped me a ton. I got another few hours per day out of my meds just by splitting the medication up and administering every few hours, timed just before/after lunch.

You do still need to acknowledge / accept that the medication can't be a 24x7/forever cure though; that crash back to sub-optimal levels of function and abundant distractability is inevitable :(.

herbst 15 hours ago [-]
That's not what you want to hear I guess. But Adderall has a dirty crash, using pure Dextroamphetamine and not one of this mix pills makes the crash more bearable and less tiring
kanbara 1 days ago [-]
funnily, i had zero issue getting vyvanse after a nearly 20 year medication gap, and being hugely successful by most metrics. i went to a psych, did an eval, and got medication. i know there are issues, but it’s interesting how different people’s outcomes are
hilux 15 hours ago [-]
There are non-stimulant ADHD meds as well. Most of us don't get a chance to try all of them.

In fact, I was surprised to learn that Adderall is highly illegal in many countries, including Japan and South Korea(), both of which have a higher standard of healthcare, and a much longer life expectancy, than the US does. In other words, they're not anti-health.

() In theory, you can bring Adderall into South Korea with your American prescription. In practice, not really.

habinero 45 minutes ago [-]
They're kind of famous for having bad mental health care and high suicide rates.

I can survive without ADHD meds, but life is a whole lot easier and a lot more enjoyable with them.

kayodelycaon 9 hours ago [-]
I’m using Wellbrutin, which is a NDRI (norepinephrine–dopamine reuptake inhibitor) antidepressant.

The main reason for this is because I’m also bipolar. First-line stimulants for ADHD cause manic episodes.

rjh29 7 hours ago [-]
Wellbrutin is not dispensed in the UK except for quitting tobacco. Annoying because it seems like a very useful antidepressant.
aaroninsf 21 hours ago [-]
This is exactly me.

Exactly.

I got gate-kept with a massive ten page plus questionaire to fill out. Got half way through the laborious free form text responses. Came back the next day and none of my work was saved.

Gave up. Haven't ever gotten back. Because...

cbsmith 13 hours ago [-]
s/providers/insurers/
wnevets 1 days ago [-]
> because doctors fear losing their license like so many did during the pain pill debacle.

Which is understandable after the monumental pain and damage oxy caused to families everywhere.

dodobirdlord 18 hours ago [-]
Only if you myopically assume all drugs have equal abuse potential, addiction potential, and negative consequences of abuse. The US federal drug schedule is a clown show.
wnevets 6 hours ago [-]
I'm sure RFK Jr will have wellness farms that everyone can go to instead of using these drugs.
Jaepa 1 days ago [-]
Conclusion for those who read the title and read it as an implied negative effect on use.

> Drug treatment for ADHD was associated with beneficial effects in reducing the risks of suicidal behaviours, substance misuse, transport accidents, and criminality but not accidental injuries when considering first event rate. The risk reductions were more pronounced for recurrent events, with reduced rates for all five outcomes. This target trial emulation study using national register data provides evidence that is representative of patients in routine clinical settings.

ethan_smith 16 hours ago [-]
The study found substantial risk reductions with ADHD medication: 38% for suicidal behaviors, 30% for substance misuse, 28% for criminality, and 20% for transport accidents - with even stronger effects for recurrent events.
distractable486 4 hours ago [-]
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leke 25 minutes ago [-]
I got my diagnosis at 49. It took about 18 months, multiple visits to a doctor and 3 different specialists, and a lot of money, but it has been a game changer to feel somewhat normal. I'm only angry because I could have lived a much better life, if I was diagnosed early on. I really believe the people that could have helped me, knew what problem I had, but didn't want to help. I don't believe that people who called me stupid and lazy were that stupid. Even now I believe there are some barriers they have because as soon as each of my children turned 13, the call from the teacher came, informing me of suspected ADHD (ADD).
Nikolas0 23 hours ago [-]
My $0.02 as a response to several comments I read in this thread: I was diagnosed with ADHD in my 40s and got Concerta. My belief is that ADHD is not a disease, nor a disability (even though it acts like one very frequently) and in fact there is evidence that ADHD is an important part of our evolution as a species.

The problem(s) mostly relies with the modern way of life and what is expected from the society at large. In that context I try to feel ok when I daydream while I have countless of boring things to take care of as I totally feel ok when I hyperfocus in a creative endeavor.

The meds are just a tool that I use no more than two times per week in order to take better care of myself and others. It is not a therapy and it's not me. I believe that Sensitive Rejection Dysphoria is very real for people like us, but the worst version of it is when you reject yourself because you are different and you try hard to be someone else.

Llamamoe 14 hours ago [-]
This is a common belief people have, especially those with mild ADHD or those who wish to be dismissive of the disorder.

Unfortunately, in reality while there are some very limited advantages, as a whole ADHD is a whole-brain dysfunction where your neurons are literally incapable of maintaining their level of operation as long as in a healthy person, with ALL of your executive functions - all self-regulation, planning, delaying gratification, emotion management, etc - being impaired across the board, not just tuned differently.

Hyperfocus is commonly brought up, but neurotypical people experience it as well. Less often, but also without the compulsive loss of control, while being able to maintain a higher level of effort and work without it at all times.

People also like to claim we'd be better as lookouts or sentries but this isn't true. People with ADHD don't pay more attention to a broader range of things, they're just incapable of focusing it when necessary, not to mention they drift off and get distracted instead of staying watchful far, far more.

That's before getting into the fact that ADHD correlates negatively with pretty much every single life outcome, not just those depending on society - things like neurodegenerative disease, cardiovascular and metabolic problems, sleep disturbance, etc.

I understand the desire to frame things you're experiencing in a positive manner, but... in this case, it doesn't really work, and I somewhat resent it personally, as it makes people less likely to take ADHD as seriously as it needs to be.

rwyinuse 3 hours ago [-]
For vast majority of human history most people spent their days doing fairly simple physical work, which didn't require that much sustained focus compared to what an average knowledge worker needs today. Obviously they didn't have smartphones, computers and other forms of distraction either. So really it's quite obvious that most people with ADHD would have done much better in such environment, compared to the unnatural mess we live in today.

So, people with ADHD have always existed, but it's our modern world full of distractions and unnatural work which makes it a much bigger deal than it would otherwise be.

11 hours ago [-]
dimal 4 hours ago [-]
I sympathize with this point of view but I disagree. I’m not sure if I’m ADHD, but I’m autistic. I’ve been diagnosed as ADHD in the past, I’m just not sure how useful it is as a diagnosis for me. I have enormous problems with focus and executive functioning. For large portions of my life I’ve been seriously disabled, unable to work or support myself. There are times where I’m unable to talk. And I still don’t see autism as inherently dysfunctional.

If you put me in a village in Europe 5000 years ago, I’d be fine. I’d be better than fine. I’d be the guy in the hunting part who could smell the fresh scat from 50 yards away. I’d be the guy who could remember all the fucking barks and plants and mushrooms that are good for what ails ya. I’d be the guy who knew the story of every god and goddess and why they’re important. Most social situations would involve people I knew very well or people in the same culture, where I could depend on knowing the rules of the culture.

The modern world is full of random noise and stifling bureaucracy. I love being autistic. But it’s awful, truly awful to have this nervous system in this society. The endless stress breaks you down day after day, year after year, and system teaches you to see yourself as inherently broken, when it’s the system that has broken you.

Maybe you’re disabled, but maybe it’s the system that did it to you.

ACCount37 2 hours ago [-]
It's copium.

People don't want to think of themselves as of "diseased" or "disabled". So you get this strange phenomenon: people who are completely deaf, or lost an entire limb, and argue quite passionately that they're "not really disabled". Coping.

ADHD screws with executive function, attention and impulse control. All three are incredibly important for a person to function in a modern society. A person with severe untreated ADHD would be unable to hold almost any job. It's a disability.

But admitting that requires the kind of mental fortitude a lot of people simply don't have.

matheusmoreira 4 hours ago [-]
Framing it as a handicapping disease is not particularly helpful either. ADHD cannot be cured, we have to live with it and cope however we can. Treatment is absolutely an option but we can also change our environment.

People act like ADHD patients are feeble minded and that just isn't the truth. In the right contexts we can also focus quite intensely. Especially with treatment.

It's true that neurotypical people also experience hyperfocus, that's not in dispute. I don't really like these comparisons to be honest. I just think the fact ADHD patients also experience hyperfocus really should make people rethink the pejorative "attention deficit" label.

scns 7 hours ago [-]
> People also like to claim we'd be better as lookouts or sentries but this isn't true. People with ADHD don't pay more attention to a broader range of things

Have to disagree. Noticing every small noise a neurotypical Brain filters out makes you a good canary.

crimsontech 3 hours ago [-]
I've done a huge number of hours on sentry duty (unmedicated) and the the hour would either pass by in an instant and I wouldn't even realise it, or it would seem to drag on for hours.

One thing I certainly couldn't do was pay attention to nothing happening for an hour just incase something happened.

kqr 6 hours ago [-]
...assuming the person is able to focus on the 30 minutes of nothing that comes before the noise.

The person in my life with ADHD would start scribbling equations in the dirt or braid the loose threads on their clothing after five minutes, and easily fail to notice the noise twenty-ive minutes after that.

rozal 5 hours ago [-]
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squigz 5 hours ago [-]
That's not how ADHD works though.
QuadmasterXLII 9 hours ago [-]
ADHD is obviously a spectrum, (possibly on top of a binary), and more and more cases on the light end are getting diagnosed, which is, I have no reason to doubt, very helpful. I don’t know if the light end is a disability or a disease.

The heavy end of the spectrum, the lying on the floor suffering crippling bladder pain but unable to muster the willpower to walk to the bathroom and piss even though that would immediately fix the problem end of the spectrum, is a disease and a disability. I cannot picture an ancestral environment where this is adaptive.

jasonfarnon 22 hours ago [-]
"The problem(s) mostly relies with the modern way of life and what is expected from the society at large."

I assumed not just ADHD but a number of other psychological conditions are more about reconciling some individuals to this particular society. It seems baked into a lot of their diagnostic criteria, like how well one "functions" at school or work. Surely ADHD would not be cognizable where people don't have to spend 8hrs/day through their youth sitting in one place.

nxobject 22 hours ago [-]
> Surely ADHD would not be cognizable where people don't have to spend 8hrs/day through their youth sitting in one place.

Or, for that matter, in a society where people regulated their days by cues like the sky and the body, rather than the carefully organized "rain or shine" clocked time needed by the Industrial Revolution.

(This thesis isn't mine: the historian EP Thompson wrote a classic article on how the transition from a rural to an industrial working class in Britain was accompanied with timetabling and "clock discipline".)

https://academic.oup.com/past/article-abstract/38/1/56/14546...

https://academic.oup.com/past/pages/special_issue_3

rcxdude 12 hours ago [-]
The line is indeed, fuzzy. The basic definition of a disorder is very much dependent on context, because in general it requires that the behavior or thought pattern is causing distress or danger to the patient or those around them. There are many facets of the human mind which have a substantial variation among the population, where some range is adaptive to certain situations and some part becomes a problem, and where exactly that flips will depend on the individual and the context they are in. But I think it's unhelpful to claim that because this line is contextual, it means there isn't really a problem. It's a problem because that individual is in that context (and often it's preferable to address the behaviour or thought patterns than the context), and there are individuals where it would be a problem in basically any context.
veunes 7 hours ago [-]
Too often the conversation swings between "meds are bad" and "meds fix everything," when the truth is way more nuanced
kruffalon 10 hours ago [-]
Isn't one of the criteria for something to be a disability that it makes it harder to function in the world you are in?

So it has to do with the mismatch between yourself (including the accommodations in place for you), the world and whatever is considered a reasonable life for a person in that world.

nathan_compton 10 hours ago [-]
I think can be a disability but not a disease, I think is the idea.
NegativeK 3 hours ago [-]
Respectfully, my experience is very different than yours -- and I'm somewhere in between you and people who have it really bad.

ADHD can absolutely be a handicap. It might be that it's exacerbated by modern life's demands, but I frankly can't be bothered to care -- I live with these symptoms that I wish would go away, and I can't switch to some world that would work well with them.

And it's not rejecting myself or trying to be someone I'm not. I spent quite a while before diagnosis doing that. Getting treatment for and acknowledging the issues of ADHD is being more aware of who I am and what I need than pretending that things will work out. They don't, and they didn't.

And I know my experience isn't unique.

thomastjeffery 4 hours ago [-]
If it's not a disability, then why can't I work on projects that I am excited to work on?

Sure, my ADHD experience is probably the impetus for most of those projects in the first place, but that doesn't help me get anything done, whether I want to or not.

It sounds like what really happened is that you found an appropriate amount/cadence of medication for your body. That's much more difficult than many realize, which is why each stimulant is sold with 5 different delivery methods: immediate release, capsule with drug dust coated in timed digestion substance, capsule with hole to pump via capillary action, skin patch, and the bonus prodrug lisdexamphetamine that metabolizes into amphetamine at the rate of digestion.

rollulus 16 hours ago [-]
You might enjoy reading “The ADHD advantage” by Anders Hansen. He describes the evolutionary explanation as well.
fragmede 3 hours ago [-]
I enjoyed reading Jurassic Park, for all it had to do with science.
matheusmoreira 21 hours ago [-]
Completely agree. People with ADHD are simply incompatible with many facets of mormal life.

Take school for example. If someone doesn't fit into the mass education model, they say they have attention deficit. That same person might then go home and hyperfocus on computer programming for 12 hours straight like a machine. It makes no sense.

The mass education model where hundreds of people sit on a chair listening to lectures for hours on end just isn't right for people with ADHD. Medications are just there to help cope with an imperfect reality which refuses to change for our sake.

onoesworkacct 14 hours ago [-]
ADHD isn't a personality quirk and also, it is fundamentally a disorder of regulation not attention. The education system (for all its drawbacks and inflexibility) works for most because they're able to regulate the urge to get up and climb random shit when they can't figure out how to start writing the answer to Q1 on the worksheet..

I also think its cope to take a disorder where a specific part of the brain tasked with very specific functions is physically less dense and performs than other people and go "ADHD isnt real he's just quirky!1"

nathan_compton 10 hours ago [-]
I guess its tempting to take like MRI/ECG style studies and draw fundamental conclusions from them about the distinction between "personality" and "disorder" but I think its good to bear in mind at least three things:

1. a lot of these studies suck. Brain imaging is very hard, the interpretation and analysis of the results involves lots of degrees of freedom, the study sizes are typically not as big as you'd like, and most of the results are only really visible in aggregate. I do not give much credence to them, as a scientist. One way to think of this is that if someone separates two groups of people into "ADHD" and "NOT ADHD" and you average their MRIs you might detect a difference in the two groups. But one person's MRI would be almost useless to assign them to one of the two groups. You could certainly try it, but it would not be very effective.

2. Literally every difference in behavior between two people or between a person and themselves at a different time is necessarily reflected in a difference in brain behavior, at least if you buy the materialist paradigm that brain -> mind or at least brain == mind. Thus, you would expect differences in personality to show up in MRI scans as well as differences which rise to the level of "disorder."

3. The brain isn't made up of "specific parts with specific functions." While its certainly true that we can roughly map different areas to different functions, its really not separable in any way that (for example) a human designed machine might be. We cannot remove and replace your "attention center" and it doesn't really mean anything to talk about it without all the rest of your brain. The part/whole relation is bullshit in all contexts (in my opinion as a mereological nihilist) but especially in neuroscience.

I guess its sort of a useful rhetorical frame to point to physical differences between brains as some kind of determination of the distinction between "mere" personality differences and "disorders" but I just don't think it makes sense in a fundamental way.

I'm a person with ADHD and Autism diagnoses and I think they are handy things to use from time to time, I think of them as entirely relational descriptions pertaining to my position with respect to the world, not fundamental ontological categories. On the other hand, I think of essentially everything as relational and I don't really believe in fundamental ontological categories so maybe I'm the fucked up one.

matheusmoreira 4 hours ago [-]
Nowhere did I claim ADHD was a personality quirk. Nowhere did I claim ADHD wasn't real. I'm not disputing the neurodevelopmental pathophysiology of ADHD. I'm questioning the labels society applies to people with such a disorder.

I claimed it's not the "attention deficit" people think it is. People with ADHD are clearly able focus when the subject is interesting enough to them. That's a huge contradiction. The truth is probably that school is way too boring for them.

I think signal to noise ratio is a good analogy. People with ADHD are easily distracted by noisy stimuli and need disproportionally high signal to focus. Society consistently fails to provide high enough SNR then labels neurodivergent people as problematic.

ADHD discussions always remind me of this article:

https://www.marktarver.com/bipolar.html

I think the bipolar diagnosis is off the mark. Substitute bipolar with ADHD though and the profile fits quite well.

dingnuts 4 hours ago [-]
it's just poorly named; it's an executive function disorder. The hyper focus you described is just as uncontrolled and pathological as lack of attention. I used to hyper focus on StumbleUpon. You think that's evidence I _don't_ have an attention disorder?

Stop spreading medical misinformation. You're extremely uninformed.

Here are some lectures, go educate yourself: https://m.youtube.com/playlist?list=PLKF2Eq0eYbbrNLoJjFpWG_U...

matheusmoreira 3 hours ago [-]
> it's just poorly named; it's an executive function disorder.

That's my point. Labeling people as having "attention deficit" leads to unnecessary stigma and marginalization.

> The hyper focus you described is just as uncontrolled and pathological as lack of attention.

I didn't say it was controlled or healthy. I said it was evidence that people with so called attention deficit were, in fact, capable of paying attention. And it is.

> You think that's evidence I _don't_ have an attention disorder?

Nobody claimed that.

> Stop spreading medical misinformation. You're extremely uninformed.

> Here are some lectures

Refer to lecture "Why is ADHD considered a disorder?".

When does it become a disorder? When it starts causing harm, adverse consequences, for the individual. When the environment starts kicking back.

In other words, if you can adapt the environment so that it doesn't kick back at the patient, harm is mitigated.

In other words, ADHD patients might adapt reasonably well to certain environments and not others, and we can reduce impairment by putting patients in an environment that is stimulating for them.

This logic is not even unique to ADHD. Numerous diseases have adaptation of the environmental as a vital part of the non-pharmacological treatment. For example, adapting the environment is vital for preventing falls in elderly patients.

So I don't see where the lectures disagree with me. I shadowed a neurologist who specialized in ADHD patients, he combined pharmacological treatment with this environmental approach and it was very successful. Schools labeling kids as problematic was a huge problem for us.

Ericson2314 18 hours ago [-]
I think this is a nice attitude. I would say I do think it's possible to hyperfocus too much, I feel like I might have done that.
throwpoaster 24 hours ago [-]
Canadian here.

ADHD diagnosis is one of the few non-socialized parts of our medical system. Because of the abuse potential they charge a fairly steep fee (cad $3k+, with a $2k+ autism assessment addon) to even attempt diagnosis (after screening by your GP — referral required).

The intake paperwork alone was perhaps 100 pages of online questionnaires that lead to interviews where they schedule counselling and evaluation sessions with you.

It took me almost a year to complete because 100 pages of “often always sometimes never” multiple choice questions (with attention checking red herrings) proved to be an almost insurmountable barrier for me.

I ended up completely surrendering to their scheduling requests: “just book it and tell me when it is. I will adjust my schedule around you. Agreeing on mutually free times with six providers is a functional impossibility. Just book it. Now. Go. Lock it in.”

It took a year to get through the maze and now they’ve booked me ASAP: three months out.

If I have an opportunity to give feedback it will be that they badly need people on their team with lived experience. It makes sense that a system designed by people who were able to complete multiple years of medical education and training is effectively blind to conscientiousness and executive function deficits.

Then again, perhaps the maze is another preventative measure: if you are able to speedrun it, perhaps you shouldn’t get medical meth.

whatevertrevor 22 hours ago [-]
Where in Canada?

I had the complete opposite experience last winter in Ontario. I asked my doctor about ADHD, he had me fill two forms, set up an appointment with a psychologist, who after a couple weeks of appointments was ready to prescribe Atomoxetine (at my request since I wanted stimulants only as a last resort).

I paid for nothing in this entire exchange, and the meds are usually covered by an extended drug plan if you have one.

ttul 19 hours ago [-]
Yeah, BC chiming in. Any physician can diagnosis you with ADHD. It’s free, as are all GP appointments.

There is nothing controversial or difficult about getting a diagnosis in this province. And the stimulant-class medications are easy to access and inexpensive if a generic option is available.

Maxious 17 hours ago [-]
I wish they would just give Atomoxetine first. Yes the side effects suck but no abuse concerns and it gets your brain working to be able to navigate the stimulant regulation disaster
throwpoaster 20 hours ago [-]
Toronto - very interesting comment, completely alien to my experience. Thanks!
myflash13 4 hours ago [-]
Try Frida. Online clinic that can get you from diagnosis to prescription in a few weeks.
wzyoi 16 hours ago [-]
There are nice clinics - I got my diagnosis in 2 working days and we started trialing stims on 3rd working day. It costed me 500CAD. The clinic is adhdvancouver.ca
cmrdporcupine 22 hours ago [-]
This wasn't the experience of our family here in Ontario. Nobody but the family doctor involved.
throwpoaster 20 hours ago [-]
Toronto - interesting. I was told by several doctors that this was standard procedure. I’ll have to double check.
replwoacause 7 hours ago [-]
Reading all of these anecdotes about how difficult it is for some people to not only get an ADHD diagnosis but also a prescription for medication makes me feel somewhat guilty. This has not been my experience living in the US. I was diagnosed over 20 years ago and since then have explored the full range of medications with various different doctors in different states. I don’t recall any of them scrutinizing me or being reluctant to prescribe. I just asked and received. And the pharmacy always filled without question. Only in the past 5 years in my state have I had to do a urine test before getting a prescription refill to prove I’m not abusing other drugs, but that’s it. I guess I’ve been lucky. To anyone curious, I recently started taking Zenzedi (which I only take once or twice per week) after reading good things about it on Reddit, and all that took was a simple note to the nurse practitioner (though she needs to have a MD write the script). They didn’t grill me on why I wanted to change from Concerta, and I even suggested my own starting dose of 10mg which she agreed to without hesitation. It’s sad to me that others are having to go through the gauntlet for the exact same thing….finding a med that works.
veunes 7 hours ago [-]
Your experience honestly highlights just how wildly inconsistent ADHD care is, even within the same country
replwoacause 7 hours ago [-]
And to add one more semi-interesting bit to this, I initially received my ADHD diagnosis after participating in a clinical trial I heard about on the radio living in FL in the early aughts. They were thorough in screening but I never did find out what group I was in or whether I was given the medicine or placebo. They were supposed to disclose that to us so many years after the study concluded but when I wrote in to find out, I was told the records were not kept and the clinic that had done the test was no longer operating. So who knows what I took for all those months. Some new experimental medication that never made it to market? Or a sugar pill?
schlauerfox 1 days ago [-]
The youtube channel of ADHD science researcher Russell Barkley gave me the push to get diagnosis in my last year of undergrad and It was like lightning to see all my symptoms laid out since childhood in context of the underlying brain science. He does a lot of debunking of bad research too. Great channel.
DrewADesign 1 days ago [-]
In addition to confirming and quantifying my more obvious and problematic symptoms, the reaction time tests clearly showed my very mild impulsivity. Nobody I know would call me impulsive, and in the questionnaires I’d have said I wasn’t impulsive, even though I had a sense I was subconsciously resisting that tendency. The tests were too quick for my usual masking reflex, and while I was still ultimately diagnosed with the inattentive variant, the tests revealed a textbook symptom I wasn’t even aware of. Quite illuminating.
gms7777 1 days ago [-]
I think especially as adults (esp. people that managed to get to adulthood without being diagnosed), a lot of people think they don't have certain symptoms, when really they just have developed elaborate systems for managing those symptoms.

I never related to "time blindness" because I was always consistently early for things, but really I was just deeply anxious about being on time for things. I would set like 10 alarms set, I wouldn't be able to do anything for an hour or two beforehand because I was worried about being late, and I'd usually show up way too early because I couldn't actually estimate when I needed to start getting ready to be on time. That doesn't exactly sound like the behavior of someone with a functional inner clock.

DrewADesign 22 hours ago [-]
Yeah time blindness is my arch nemesis… but it has led to some pretty serious grit and persistence for difficult things under pressure. You need me to start on an arduous, long, difficult task right this second? No problem. You need me to do something on February 23rd 2027 at 4:30am in Anchorage Alaska? Should be fine as long as I’m still using the same calendaring system then. You need me to chip away at a background task steadily for two weeks? I hope you really mean you need me to work on other neat cool things for 13 days, panic, and stay up all night getting it done. (Apparently adrenaline is great for focus, too)
LtdJorge 14 hours ago [-]
Fck, you just described me.
DrewADesign 9 hours ago [-]
Yeah I mean you can’t get much more classic ADHD than that.
fuzzfactor 4 hours ago [-]
Also one of the fairly rewarding things can be to feel needed, regardless of whether everybody pays attention to it or not :)

One of the more non-rewarding things can be deadlines, especially destructive ones.

andoando 2 hours ago [-]
People can develop fears of anything from a multitude of reasons. There is nothing to say there is a singular cause for your behavior.

We may both even have 5 similar symptoms caused by different things

aidenn0 18 hours ago [-]
I'd like to see some research, but anecdotally the reaction time tests are overperformed on by people who are serious gamers.

I am absolutely wildly impulsive (and was even more so when I was younger), but when I took the reaction time test in college, I was playing counterstrike multiple hours a day. I tested in whatever the "in between" area was on that for impulsivity. None of the people I knew that played twitch games a lot got a positive result on that test.

tstrimple 1 days ago [-]
I'm not familiar with the reaction time test. Based on some reading I've done, ADHD is associated with higher variance in reaction time. Despite my ADHD symptoms, I've never thought reaction time was one of them. Quite the opposite really. The hours and hours honing my "skills" in first person shooters puts my reaction time and precision well above human average. But basically the only time I'm testing my reaction speeds is when headed towards those ADHD hits. The few times I've had opportunity to test it, it's felt very "game like" in science centers and places like that and I still have consistently fast reaction times.

The "clumsy" aspect is similar. I'm not clumsy. My balance and coordination are a little above average based on observations like rock hopping to cross streams while hiking.

DrewADesign 22 hours ago [-]
It’s not a simple quantitative reaction time test— they use it to look at various qualitative things based on what you’re reacting to. For example, how often and in what ways you improperly gave anticipatory reactions based ostensible patterns that change without warning. I have no expertise in the matter but I imagine someone with very slow reaction time or particularly bad pattern recognition would make it much more difficult to get reliable results from that test.
teamonkey 1 days ago [-]
Out of interest, how are you with fighting games (Steeet Fighter, Mortal Kombat etc.) and Souls-like games where you have to predict and parry at the correct moment?
tstrimple 21 hours ago [-]
I never got into fighting games outside of Bushido Blade which I think translated quite well in my domination of Souls-like games. Domination is an exaggeration. I don't feel like I'm particularly good at those games, but I don't think they are nearly as difficult as the reputation conveys. It took me fewer than a dozen tries to kill Malenia in Elden Ring and most of the bosses I was able to kill in the first or second run.

On the other hand I had a hell of a time getting used to the parry sequences in Expedition 33. It felt at times like they were intentionally trying to fool me into parrying at the wrong times based on visual cues. Which... they were. The auditory cues were more reliable and once I got used to that I breezed through the rest of the game.

teamonkey 6 hours ago [-]
That’s interesting, I’m more-or-less the same.

I ask because FPS gameplay contains a whole host of different skills, including the precision of your movements, the ability to accurately predict and track the enemy’s position on screen, as well as your reaction times, sequencing movements and so on. Potentially you could be exceptionally good at some of these and unusually bad at others and still emerge as a good FPS player.

Fighting games are a bit more pure, leaning more heavily on reaction times, timing and sequencing of moves.

Recent understanding of dyslexia is that it’s actually a kind of sequencing problem in the brain. I wonder if this is more descriptive of the issues faced by ADHDers?

tstrimple 2 hours ago [-]
I wonder now if I tended to avoid those more frenetic fighting games because to your point it becomes reaction, rection, rection. It's almost constant throughout a fight to the point where it looks like button mashing to the uninitiated. If my reaction times are a more limited pool, I could see them getting exhausted in a fast fighting game where as something like Bushido Blade just needs those great reflexes for a couple exchanges. Similar in FPS where you can balance reactions and game sense. Even Elden Ring boss fights aren't as crazy as a Tekken match against a skilled opponent.
kruffalon 1 days ago [-]
https://www.youtube.com/channel/UC0tLWu7ljYVFPiZQfHjTMsA
ycombinete 6 hours ago [-]
Just looking now at his channel now. I’m happy to see a critique of Gabor Mate’s ADHD theory in his playlists.

I’ll watch that for sure as I’ve always felt very uneasy, and a little indignant, listening to Mate talk about ADHD; but I’ve never been able to put my finger on why exactly!

bn-l 6 hours ago [-]
He has excellent lectures on the science and history (hundreds of years which was surprising to me that it had been studied formally for so long yet is still a weird and new “American disease” in Australia—-even considering how backwards and slow we are down here).
veunes 7 hours ago [-]
That kind of clarity can be life-altering
deesep 1 hours ago [-]
Anecdotally, I've found that taking a tablespoon of Apple cider vinegar with water once a day has had positive effects on my ADHD symptoms. I've been doing this for the past 2 months and I notice I'm more focused, and less anxious. I started taking it to fix my gut issues, but after a few days, I noticed my ADHD symptoms were suddenly minimal.
bentt 37 minutes ago [-]
I've also noticed that fasting has a positive effect in this way. It wouldn't be too surprising for the gut to play a role in ADHD experience since it is involved in regulation of various neurotransmitters.
fossuser 1 days ago [-]
My hypothesis about this for a long time has been stimulants help everyone be more productive (with some tradeoffs) and ADHD is kind of a weakly differentiated diagnosis that could apply to most people.

Probably something like this was lost when people stopped smoking, obviously beneficial for health - but a huge amount of the public was taking stimulants regularly via nicotine until relatively recently.

ttul 19 hours ago [-]
Your hypothesis is contracted by mountains of high quality scientific evidence. ADHD is a well-defined condition and there is an accepted way of diagnosing someone with it that effectively divides those with the condition from those without it. Stimulant medications may help many people to feel and be more productive, but that does not imply that people who meet the criteria for ADHD do not represent an identifiable group.

I highly encourage you to browse the Consensus Statement on ADHD, referenced below. It’s a compilation of 202 facts about ADHD, accepted by a global consensus of experts on ADHD.

Faraone, S. V., Banaschewski, T., Coghill, D., Zheng, Y., Biederman, J., Bellgrove, M. A., Newcorn, J. H., Gignac, M., Al Saud, N. M., Manor, I., Rohde, L. A., Yang, L., Cortese, S., Almagor, D., Stein, M. A., Albatti, T. H., Aljoudi, H. F., Alqahtani, M. M. J., Asherson, P., … Wang, Y. (2021). The World Federation of ADHD International Consensus Statement: 208 evidence‑based conclusions about the disorder. Neuroscience & Biobehavioral Reviews, 128, 789–818. https://doi.org/10.1016/j.neubiorev.2021.01.022

andoando 7 hours ago [-]
Which part of the disgnosis do you find objective measures? There isnt a single scientific one

Take a look at studying looking at the consensus on diagnosis. Even among psychatrists the same patient gets diagnosed with different things.

bruce343434 4 hours ago [-]
QbTest [https://www.qbtech.com/adhd-tests/qbtest/]

It measures your ability to focus your attention quite objectively and there's statistically significant differences between neurotypical and adhd performance. This test was used during my own diagnosis.

andoando 1 hours ago [-]
There is no doubt some differences in people who experienced mental problems, and sought or were given a diagnosis, and the general population.

QbTest was retroactively designed specifically to target this subjectively diagnosed ADHD group. This may be evidence that an ADHD diagnosis does differentiate populations based on some criteria, but it says nothing to this differentiation being caused by a singular disorder/pathology

I'd like to see a study of this test done on other comorbidities. I found this for example which finds a weak relation in these tests https://pubmed.ncbi.nlm.nih.gov/38317541/ differentiating between ADHD and depression, anxiety, OCD.

Here is another study. https://pubmed.ncbi.nlm.nih.gov/37800347/ >Conclusions: When used on their own, QbTest scores available to clinicians are not sufficiently accurate in discriminating between ADHD and non-ADHD clinical cases. Therefore, the QbTest should not be used as stand-alone screening or diagnostic tool, or as a triage system for accepting individuals on the waiting-list for clinical services. However, when used as an adjunct to support a full clinical assessment, QbTest can produce efficiencies in the assessment pathway and reduce the time to diagnosis.

I'll also point out few things:

1. Attention/focus is not a simple single metric one can measure and varies entirely on the task/situation at hand. That is a computerized test with no actual risk/reward to a person is not a predictor of attention/focus in general life. Focus/attention is driven largely by the feelings, rewards, risks, outcomes someone sees, those with diagnosed ADHD are already entering this study with an entirely different mental perception/attitude.

2. There is inherent bias present in ADHD patients in they may intentionally fudge their performance to meet their diagnosis. Unlike most disorders, people actually seek an ADHD diagnosis for access to stimulants, and its incredibly easy to understand how to mimic that behavior for these tests.

3. Other computerized tests have existed aiding in diagnosis, so this becomes circular.

ttul 4 hours ago [-]
You’re right that there isn’t a _single_ “scientific” or purely objective test for ADHD. The consensus statements on ADHD make this explicit: diagnosis is clinical, not biomarker-based [1][2], even though biomarker tests are being developed and this is a promising area of research.

That said, there are structured and semi-objective tools that add quantifiable data to the process, even if they can’t stand alone; and, these tools in combination reveal a very real condition that is also highly treatable once diagnosed:

1. Rating scales (e.g. Vanderbilt, CBCL) use structured questionnaires to quantify symptom frequency. They’re subjective (based on parent/teacher/patient report) but standardized. Many mental health conditions are assessed using standardized rating scales [3].

2. Continuous Performance Tests (CPTs) and objective activity measures can quantify attention lapses and hyperactivity. They’re more “objective,” but consensus statements say they’re insufficient for diagnosis _in isolation_ [4]. I did a CPT test and it lit up for ADHD, which was helpful in ruling out other conditions.

3. Multi-informant reports (parents, teachers, patients) are required in good clinical practice to triangulate symptoms across contexts [5]. As I wrote in my first comment, ADHD exists only when the symptoms affect functioning in many areas of life.

4. Experimental methods (like neuroimaging or computerized neurocognitive tests) show promise but aren’t yet validated for clinical use [6].

The core of diagnosis remains a comprehensive clinical interview and history guided by DSM/ICD criteria. This is where “inter-rater variability” arises: different psychiatrists may weigh the same evidence differently. Consensus statements acknowledge this diagnostic variability, which is a limitation of current psychiatric nosology in general (not just ADHD).

So to answer directly: no, there isn’t a single objective test. But there are quantifiable tools that support diagnosis. The diagnosis itself is still fundamentally consensus- and criteria-driven, not biologically “proven.” But this limitation is minor and is common in psychiatry where many real conditions are diagnosed using a combination of approaches because no single test exists (and may never).

[1] Faraone, S. V., Asherson, P., Banaschewski, T., Biederman, J., Buitelaar, J. K., Ramos-Quiroga, J. A., Rohde, L. A., Sonuga-Barke, E. J., Tannock, R., & Franke, B. (2021). The World Federation of ADHD International Consensus Statement: 208 Evidence-based conclusions about the disorder. Neuroscience & Biobehavioral Reviews, 128, 789–818. https://doi.org/10.1016/j.neubiorev.2021.01.022

[2] Kooij, J. J. S., Bijlenga, D., Salerno, L., Jaeschke, R., Bitter, I., Balázs, J., Thome, J., Dom, G., Kasper, S., & Nunes Filipe, C. (2019). Updated European Consensus Statement on diagnosis and treatment of adult ADHD. European Psychiatry, 56, 14–34. https://doi.org/10.1016/j.eurpsy.2018.11.001

[3] Collett, B. R., Ohan, J. L., & Myers, K. M. (2003). Ten-Year Review of Rating Scales. V: Scales Assessing Attention-Deficit/Hyperactivity Disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 42(9), 1015–1037. https://doi.org/10.1097/01.CHI.0000070245.24125.B6

[4] Hall, C. L., Valentine, A. Z., Groom, M. J., Walker, G. M., Sayal, K., Daley, D., & Hollis, C. (2016). The clinical utility of the Continuous Performance Test and Objective Measures of Activity for diagnosing and monitoring ADHD in children: A systematic review. European Child & Adolescent Psychiatry, 25(7), 677–699. https://doi.org/10.1007/s00787-015-0798-x

[5] American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.

[6] Cao, Q., Zang, Y., Sun, L., Sui, M., Long, X., Zou, Q., & Wang, Y. (2006). Abnormal neural activity in children with attention deficit hyperactivity disorder: A resting-state functional magnetic resonance imaging study. NeuroReport, 17(10), 1033–1036. https://doi.org/10.1097/01.wnr.0000224769.92454.5d

andoando 1 hours ago [-]
1. Standardized is absolutely meaningless here. We can develop any set of symptoms, develop a standardized questionnaire, and have millions of people who meet it.

2. CPT measures attention/focus in an entirely made up lab scenario. Attention and focus are not singular numbers, and are deeply tied to the actual emotions, risks, rewards present in a situation, and cannot be so easily measured. I can see the value of a test that measures noticeable difference between two groups, but that says nothing about the cause of those differences, but simply that we can identify different groups of people. You may also very well be selecting here who are depressed, stressed, low energy, or simply people who see no point in spending energy on a completely meaningless task, etc. In any case, I do not believe the evidence of CPT in differentiation is well established. https://pubmed.ncbi.nlm.nih.gov/38317541/ https://pubmed.ncbi.nlm.nih.gov/37800347/

3. Personal reports of another person's mental state is as subjective as you can get. All were selecting here is people who do not fit the defined, artificially built, educational or work systems. One may even be excellent, motivated student of music but all accounts fail in a classroom setting.

>The core of diagnosis remains a comprehensive clinical interview and history guided by DSM/ICD criteria.

Clinical interviews are guided, and their interpretation is subjective.

DSM is as subjective as you can get. Every single on of the symptoms has the wording "Often", as decided by a person evaluating another person's account of their life. Do you have an objective measure of what "often" means?".

More importantly, a collection of symptoms does not constitute a singular cause. By the admission of the DSM itself, two people with the diagnosis can share only 4 out of the 9 symptoms (me 1-6, you 3,9), meaning every single one of the symptoms has independent causes. How do you know one does not simply have 6 symptoms by caused by entirely different factors? In a population of hundreds of millions, its a guarantee. You could again, define random symptoms, give it a name and have millions of people going "Wow, no way, I meet all of this, I didnt know I have xyz!"

Lastly, I find it really interesting is that the diagnosis of ADHD came far before we had any of this technology and research you point to. Why was it so popularly pushed and accepted then? Is it possible, were simply trying very hard to fit a completely socially agreed upon disorder?

fossuser 8 hours ago [-]
The diagnosis criteria in that consensus is pretty weak imo and part of the subjectivity I’m talking about.

They claim there are observable differences, but none of these alone can be used for diagnosis.

> The diagnosis of ADHD has been criticized as being subjective because it is not based on a biological test. This criticism is unfounded. ADHD meets standard criteria for validity of a mental disorder established by Robins and Guze (Faraone, 2005; 1970). The disorder is considered valid because: 1) well-trained professionals in a variety of settings and cultures agree on its presence or absence using well-defined criteria and 2) the diagnosis is useful for predicting a) additional problems the patient may have (e.g., difficulties learning in school); b) future patient outcomes (e.g., risk for future drug abuse); c) response to treatment (e.g., medications and psychological treatments); and d) features that indicate a consistent set of causes for the disorder (e.g., findings from genetics or brain imaging)

I don’t find this very persuasive and it’s a problem in the field generally.

thisislife2 18 hours ago [-]
> "high quality scientific evidence"

Mostly, unfortunately, funded by Pharmaceutical companies - ADHD Nation: Children, Doctors, Big Pharma, and the Making of an American Epidemic ( https://www.amazon.com/ADHD-Nation-Children-American-Epidemi... ):

> More than 1 in 7 American children get diagnosed with ADHD—three times what experts have said is appropriate—meaning that millions of kids are misdiagnosed and taking medications such as Adderall or Concerta for a psychiatric condition they probably do not have. The numbers rise every year. And still, many experts and drug companies deny any cause for concern. In fact, they say that adults and the rest of the world should embrace ADHD and that its medications will transform their lives.

astrange 17 hours ago [-]
Properly designed preregistered studies are credible even if they're funded by people you don't like. All medication in the US is approved by studies funded by the company that applies to be able to sell it. Who else would be motivated to study them?
thirdacc 21 hours ago [-]
>My hypothesis about this for a long time has been stimulants help everyone be more productive (with some tradeoffs)

Of course they do. They're stimulants, that's what they do. Some people just need them to be closer to normal, or whatever's considered normal in post-Industrial society. Modafinil promotes wakefulness in everyone, not just narcolpetics. Anxiolytics calm down everyone, not just the anxious, and psilocybin makes everyone feel euphoric, not just the depressed. It would be weird if stimulants only had an effect of ADHD patients.

> and ADHD is kind of a weakly differentiated diagnosis that could apply to most people.

I don't think we really understand it yet, but it's not something most people have. As the article mentions, people ADHD have a higher rate of transportation accidents, lower life expectancy, higher crime rates, higher addiction rates, etc. The differences show up in brain scans, performance tests, genetic biomarkers, heritability/twin studies, etc. Whether you think of it as a disability, or brain type, or whatever - ADHD is something real.

> Probably something like this was lost when people stopped smoking, obviously beneficial for health - but a huge amount of the public was taking stimulants regularly via nicotine until relatively recently.

Yes, and this is possibly why 35-55% of adults with ADHD smoke today, compared to 19% of the population. Studies have shown that nicotine is helpful for everyone but particularly helpful for those with ADHD. Nicotine-derived formulations are still being explored.

StevenWaterman 8 hours ago [-]
> It would be weird if stimulants only had an effect of ADHD patients

One example of this actually happening is the concept of a "stimulant nap" in people with ADHD, where stimulants actually make them sleepier. Also manifesting as "I tried coke once, it didn't do anything, I just felt sleepy"

Terrible source but it's a pretty common thing: https://www.reddit.com/r/ADHD/comments/hkkyjl/you_know_your_...

agency 8 hours ago [-]
I find the claim (repeated verbatim in some of the comments here) that people with ADHD process stimulants differently particularly specious. Are there any medical studies/not-reddit threads that suggest anything like this?
StevenWaterman 7 hours ago [-]
Essentially the idea is that there is an "optimal" amount of alertness (inverted U curve). People with ADHD start below the optimal point, and stimulants move them up towards the optimal point. People without ADHD are typically closer to the optimal point, and stimulants move them past it.

Someone with ADHD taking a large dose will therefore feel the same as someone without ADHD taking a small(er) dose.

Methylphenidate improves sleep in people with ADHD: https://pmc.ncbi.nlm.nih.gov/articles/PMC2276739/

> Compared to [non-adhd] controls untreated [adhd] patients showed increased nocturnal activity, reduced sleep efficiency, more nocturnal awakenings and reduced percentage of REM sleep. Treatment [of those with adhd] with methylphenidate resulted in increased sleep efficiency as well as a subjective feeling of improved restorative value of sleep.

I can't find a corresponding paper studying the effect of stimulants on sleep in healthy adults. I would assume it hasn't been studied because it's common knowledge and it's not worth the risk of making healthy people take stimulants. I also don't think that's the part you were disputing.

ttul 19 hours ago [-]
ADHD is a well-established, highly heritable neurodevelopmental disorder. Large-scale twin, genetic, neuroimaging, and longitudinal studies consistently show distinct brain, behavioral, and outcome differences compared to the general population. While we don’t yet understand every mechanism or subtype, the condition is robustly characterized and recognized by all major medical bodies. The World Federation of ADHD International Consensus Statement concludes: “ADHD is a genuine neurodevelopmental disorder with a well-documented genetic and neurobiological basis” and emphasizes that claims to the contrary are “contrary to scientific evidence and risk causing harm” [1].

Medical and psychological professionals are VERY confident that ADHD is a real condition—on par with the confidence they have in diagnoses like major depressive disorder or generalized anxiety disorder.

Across psychiatry, ADHD, depression, and anxiety are all among the best-documented psychiatric conditions. There is more skepticism about disorders with fuzzier boundaries (e.g., “personality disorders” or “internet addiction”), but ADHD is NOT in that category.

I believe ADHD is stigmatized in our culture because our modern world makes us all feel distracted at times; therefore, it seems like people with the diagnosis are perhaps getting a “free ride” by blaming their poor behavior on a “condition”. But ADHD is so much more than just having a hard time focusing because of social media and phones. It manifests as a spectrum of extreme challenges that lead over time to sufferers having a significantly harder time navigating life than people without ADHD.

Merely having a hard time concentrating does not make you an ADHD candidate. You must experience a range of symptoms that interfere materially in multiple areas of life.

⸻

Reference

[1] Faraone, S. V., Banaschewski, T., Coghill, D., Zheng, Y., Biederman, J., Bellgrove, M. A., Newcorn, J. H., Gignac, M., Al Saud, N. M., Manor, I., Rohde, L. A., Yang, L., Cortese, S., Almagor, D., Stein, M. A., Albatti, T. H., Aljoudi, H. F., Alqahtani, M. M. J., Asherson, P., … Wang, Y. (2021). The World Federation of ADHD International Consensus Statement: 208 evidence-based conclusions about the disorder. Neuroscience and Biobehavioral Reviews, 128, 789–818. https://doi.org/10.1016/j.neubiorev.2021.01.022

Spooky23 23 hours ago [-]
That’s a good point on the nicotine.

I found out that i have ADHD through a process of dealing with a hearing issue - I have something called auditory processing disorder (APD), which means while I have excellent hearing, my brain has difficulty processing speech in high noise environments, especially with multiple people or frequencies that correlate to women. ADHD and autism spectrum disorders are highly correlated with it.

A friend who is an audiologist was out with me at an event and basically spotted the adaptations that I had adopted subconsciously over my life (I’m in my 40s). I then got tested and confirmed. It’s likely a result of many consecutive ear infections I had as a kid.

When reading up on APD, the literature describes stories of various people… and it was like looking back on a story of my life. The ADHD correlation is thought to be related because of the way the brain develops (or doesn’t) in the presence or absence of stimuli.

I say this because it would be easy to dismiss my scenario. By most measurements I’m successful and doing great. But had I known or maybe been treated in the past, certain difficult aspects of my life would have likely been managed better or avoided. Brains are complex, and it’s important not to dismiss that problems that people have.

mrexroad 22 hours ago [-]
Clinically ADHD and suspected APD here. I also have excellent hearing in both ears (20k+ hz), but I’m shit at understanding conversations in noisy environments… especially if my wife is speaking. Her voice is markedly harder for me to process than other people’s when there’s background noise. She used to assume I was being ADHD and not paying attention, etc, and get frustrated, but after years of me visibly focusing on her with unreasonable intensity while listening, she started accepting it. It’s always ironic that my hearing is usually noticeably better than any friends or family (both in frequency range and noticing sounds), but I’m often the only one who can’t fully follow conversations at a restaurant/bar/conference/etc.
kayodelycaon 9 hours ago [-]
Same. Excellent hearing but I can’t follow conversations in noisy places. I only catch every other word. It’s like my brain isn’t filtering out the noise in real time so it just stops hearing.

Annoyingly, this can also affect video calls when people don’t speak clearly.

Spooky23 20 hours ago [-]
Yeah that’s remarkably similar to my experience. The only surprise is that my hearing was excellent — all of those punk shows in the 90s didn’t damage my hearing!

If it bugs you, a good audiologist or instrumentation specialist can measure the frequencies impacted and mitigate it with hearing aids. I tried it, and i would best describe it like transitioning from 1080p to 4k. The gotcha is the hearing aids are expensive and it is difficult to get a diagnosis that insurance will cover as it’s technically not a hearing loss.

spangry 16 hours ago [-]
Pretty sure that's what I have too (and am diagnosed ADHD). I used to complain to my Mum that I couldn't hear what people were saying on the bus back home from school. She took me to get a hearing test and it turns out I have bat-like hearing. I'm just not able to seperate out speech from background noise - noisy restaurants and bars are a nightmare.
jakkos 21 hours ago [-]
> ADHD is kind of a weakly differentiated diagnosis that could apply to most people

I don't think this hypothesis would survive a look through the literature on google scholar. ADHD is associated with huge increases in risks of suicide, substance abuse, homelessness, accidents, crime, autoimmune disease, etc etc etc. It's not just "damn I find it hard to focus sometimes".

mrlongroots 20 hours ago [-]
I have diagnosed ADHD and I agree largely with the person you are responding to.

The claim is not that ADHD is not a set of people with real psychiatric disorders, but it is a loose umbrella for what are actually disparate problems.

I recently learned that my symptoms, to a large extent, can be explained more accurately as POTS or something adjacent, and the meds I guided my psychiatrist towards were far more helpful than the stimulants I was being prescribed. This was a combination of me, reddit, and later LLMs arriving at me-specific diagnoses that go beyond clinical guideline regimes.

jakkos 11 hours ago [-]
> a loose umbrella for what are actually disparate problems

For me, the DSM-V & DIVA criteria are eerily accurate. I was diagnosed as an adult and it felt like a cruel cosmic joke reading through the psychiatrist report and realizing that most of my past and present issues were repeatedly-documented commonalities of a single condition. It was as if my life had just been playing out from a predetermined script.

I fully agree that that many distinct conditions are incorrectly swept under the "ADHD umbrella", but ADHD is not in any way a "loose" description of me.

> more helpful than the stimulants

My currently prescribed stimulants have been the only thing to ever make me feel consistently "okay", after having previously given up on medications ever helping. I'm sure they also enable me to write a few more lines of code per day, but I'd still be taking them even if they made me significantly worse at doing so.

fossuser 8 hours ago [-]
My criticism is not that the criteria don’t apply or that people don’t think they do - but that most people reading it seem to describe what you’re saying.

It seems more like a horoscope to me - everyone can find themselves in the criteria. It’s an observable thing, I’m just not sure I buy its special distinction.

People also used to make the claim that the stimulant drugs had special effects (or even opposite effects) on those with ADHD vs. the non ADHD population which always seemed like bullshit to me, but I don’t see that claim being made here anymore.

Edit: after writing this comments others in the thread started making this claim

Jach 5 hours ago [-]
I largely agree with you but it's not quite as generic as horoscopes and similar can be. Let's look at the DSM-V's diagnostic criteria for ADHD:

A. A persistent pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning or development, as characterized by (1) and/or (2). B. Several inattentive or hyperactive-impulsive symptoms were present prior to age 12 years. C. Several inattentive or hyperactive-impulsive symptoms are present in two or more settings (e.g. at home, school, or work; with friends or relatives; in other activities). D. There is clear evidence that the symptoms interfere with, or reduce the quality of, social, academic, or occupational functioning. E. The symptoms do not occur exclusively during the course of schizophrenia or another psychotic disorder and are not better explained by another mental disorder (e.g. mood disorder, anxiety disorder, dissociative disorder, personality disorder, substance intoxication or withdrawal).

I think E is probably a common miss, and fits with ADHD being over-diagnosed vs. other disorders that can have overlapping symptoms. The differential diagnosis section could perhaps be more detailed. But now briefly looking at A's (1) and (2). (1) Inattention: Six (or more) of the following symptoms have persisted for at least 6 months ... (lists 9 symptoms related to forms of inattention, the most generic of which I think is just f: "Often avoids, dislikes, or is reluctant to engage in tasks that require sustained mental effort (e.g. schoolwork or homework; for older adolescents and adults, preparing reports, completing forms, reviewing lengthy papers)") (2) Hyperactivity and impulsivity: Six (or more) of the following symptoms .. (lists another 9 symptoms -- I count 3 pretty generic ones in a. (often fidgeting), f. (often talking excessively), and g. (often not waiting for a turn in conversation or completing people's sentences -- common in online meetings)).

While flawed I think this is enough detail to diagnose someone and clearly say "you're different", it's not nearly as broad as a horoscope "this sign is strong" or "that sign is deep" language and similar. The "Often" qualifier does a lot of work. Nevertheless, two people can both be diagnosed with "ADHD" and yet have few to no overlapping diagnostic symptoms.

owkman 5 hours ago [-]
What do you mean by POTS in this context? Postural orthostatic tachycardia syndrome? Would love to hear more
mrlongroots 52 minutes ago [-]
Yep! A short summary of my n=1 findings (currently very speculative, but also sound I think, am meeting with my cardiologist next week to see what he thinks).

The type of ADHD I have seems to have an "autonomic nervous system impairment" component and a symptom profile overlapping with hyperadrenergic POTS.

1. I respond much better to Guanfacine ER (GFC) than stimulants alone (currently complementing with Vyvanse (LDX) 40mg, but I'd rate the Guanfacine as critical)

2. My blood pressure is very volatile, and GFC is supposed to have an impact but did not in my case, at least initially. I'd take GFC at bedtime and LDX in the morning, and on ChatGPT's suggestion, I asked my psych if I could take them together in the morning. Gamechanger for my blood pressure: the explanation seems to be that LDX makes my sympathetic nervous system extra simulated (on top of a poor baseline), and co-timed GFC balances it out.

3. I have poor cardiac endurance, and I find running nearly impossible. I'm a healthy young male who does weights and all. At ChatGPT's suggestion, I wore a Polar H10 and measured my resting heart rate while sitting, and then while standing still. I get a jump from 80bpm to 115bpm-ish, a strong indicator for something orthostatic.

I'm currently exploring rowing (with a concept2). I don't know why but it has a strong impact on my mental state that goes beyond general exercising: something about the rhythmic entrainment it produces, while being recumbent (good for POTS).

NegativeK 3 hours ago [-]
I grew up with this belief (not your belief; it's a common one) and it hindered me from realizing I needed help.

I regularly have people doubt my diagnosis to this day. If we talk about it more, a lot of them _continue_ to doubt me even after I explain masking.

Again, it's not just your belief -- I grew up hearing radio jockeys calling ADHD "bad parenting disease" -- but this belief is harmful. It ostracizes people and discourages help for a disability that causes measurable harm.

pygy_ 16 hours ago [-]
I don't know if the evidence is more than anecdotal, but I've read that ADHD smokers who are taking adderal have to increase the dose of their treatment to remain functional when they quit smoking.

I've been taking nicotine patches for half a year now, with great success (and it is available OTC unlike other stimulants). Nicotine in itself isn't toxic at these doses (7, 14, 21mg), it's a cool life hack :-).

fossuser 5 hours ago [-]
I enjoy cigars and notice the positive effect, my fear with the patches or Lucy/zyn is that it not being self limiting seems to lead to people having one in their lip literally every waking minute when they’re not eating.
pygy_ 1 hours ago [-]
Patches are changed once per day, and their pharmacokinetics isn't addictive (the nicotine blood levels rise too slowly to give you a dopamine boost).

I sometimes realize in the afternoon that I forgot to change my patch in the morning because I'm a bit drowsy (a feeling not unlike being uncaffeinated when you're used to drinking coffee). AFAIK the withdrawal symptoms fade out in at most a week.

Llamamoe 14 hours ago [-]
> and ADHD is kind of a weakly differentiated diagnosis that could apply to most people.

It's not, the problem is that it sounds like it because ~everyone faces some (way) lesser version of the struggles ADHD people face literally every day, many of whom probably do have some subclinical degree of executive dysfunction.

My personal thumb rule is that somebody is capable of finishing school, autonomously managing their living conditions, finding and keeping a job, and having at least a modicum of social life at the same time, they're high-functioning enough that they almost definitely don't have ADHD, or only some ultra-light version of it.

rwyinuse 3 hours ago [-]
The problem with your rule of thumb is that there can be lots of external factors at play. Like, what if the person happens to be deeply gifted and/or interested in some school subjects, allowing hyperfocus on them? What if there is major external pressure pushing them to take care of their home, do well at school etc?

I think ADHD is a spectrum, which includes those with "ultra-light" symptoms as well. Whether those in the lower-end of the spectrum need stimulant medication is a different matter.

kayodelycaon 9 hours ago [-]
High-functioning doesn’t mean you’re not suffering horribly every single day. It can mean you’re a strong willed and good at masking.

I was “functional” through a four month long psychotic break in which I was constantly one mistake from people finding out I wasn’t human and killing me. (I’m fine now. No lasting trauma fortunately.)

How someone looks from the outside isn’t a good measure of their mental health. How many people have been depressed and killed themselves without any obvious warnings?

0xCMP 1 days ago [-]
I've also heard something similar. That maybe the reason so many are diagnosed today[0] is they were self-medicating via smoking.

[0]: Which requires it to be affecting your life -- NOT that you actually do or don't have it and are dealing with it okay. Diagnostic criteria is that it must be hindering you in a job/school/relationships/etc.

rrrrrrrrrrrryan 22 hours ago [-]
> a huge amount of the public was taking stimulants regularly

Anecdotally, 100mg of caffeine combined with 200mg of L-theanine makes me maybe 25% as productive as I am on 5mg of Adderall, which is actually enough for me to function most days.

enneff 23 hours ago [-]
The science doesn’t support your hypothesis btw.
fossuser 8 hours ago [-]
I’m willing to update, but a lot of “science” is bullshit.
jasonfarnon 22 hours ago [-]
Meaning what? All those college kids who took a friend's ritalin prescription to complete a term paper could have done just as well without it? I'm skeptical. Some of us wouldn't have even done the term paper without it, or would have mailed it in. I tend to think of it as little different than steroids. Maybe there's a bigger boost for some individuals than others, but the boost is probably across the board.
yosame 21 hours ago [-]
There was a study where they tested the effects of ADHD meds on test performance and perceived performance. It found that stimulants increased perceived performance for everyone, but actual test scores were only improved for people with ADHD.

This is a good overview of the literature: https://www.frontiersin.org/journals/neuroscience/articles/1...

11 hours ago [-]
22 hours ago [-]
brikym 24 hours ago [-]
It's a performance enhancing drug for a lot of people. So many of my colleagues are on it.
matheusmoreira 20 hours ago [-]
Stimulants will stimulate anyone with a nervous system. It's just that ADHD patients will respond disproportionately well to the treatment, thereby justifying the risks.
astrange 17 hours ago [-]
Although "stimulate" is a bit misleading. They can calm you down if they stimulate the part of the brain responsible for calming you down more than the other parts.
TrackerFF 1 days ago [-]
I'm on Ritalin - which works for me. Where I'm from (Norway), getting a diagnosis is no walk in the park. Very extensive process, if you're adult.

At least the doctors I've seen, have all been very precautious in prescribing anything other than the basics. If Ritalin doesn't work for you, they'll obviously try something other...but my doctor told be straight up that it is a red flag when some patients will ask specifically for Adderall, as the potential for misuse is much higher. And for him, it was a last resort.

kstrauser 1 days ago [-]
That's interesting. I'm in the US and my doctor prescribed Adderall for me. While I'd obviously never argue that a drug can't be abused, for me personally, I can't imagine abusing Adderall more than, say, ibuprofen. It's not that it's unpleasant to take it, but that it has zero pleasant qualities, either, except that now I can pay attention to things that don't fascinate me. It doesn't feel good. It doesn't (seem to) change my mood. Maybe I feel a little more awake after I take it, but that's also the same time of day when I have my morning coffee, and I can't tell you which has more of an alertness effect on me.

It's a stimulant. I have no doubt that someone's found a way to abuse it. But for me, I can't for the life of me imagine why anyone would want to. Other drugs like coffee or beer are much more pleasant. If I realize I forgot to take my daily Adderall, oops! Guess I might not get as much work done today as I'd planned, but not to the point where I'd go back home to get it, and I certainly wouldn't feel a craving or desire to.

baby_souffle 24 hours ago [-]
> I can't imagine abusing Adderall more than, say, ibuprofen. It's not that it's unpleasant to take it, but that it has zero pleasant qualities, either, except that now I can pay attention to things that don't fascinate me. It doesn't feel good. It doesn't (seem to) change my mood.

Years before I was diagnosed with ADHD, I was offered some cocaine. It did not effect me like everybody else. I assume that it's a similar deal with adderal. You and I are who the medication is _meant_ for. For more neurotypical people, it's not a "leveling" effect, it's - apparently - an elation.

kstrauser 24 hours ago [-]
I do believe you’re right. I truly mean that I don’t feel anything different when I take it, just more focused. There’s no high, no racing heart, no hyper alertness, or any of the other stereotypical stimulant reactions. I just get more work done than usual, then go home and sleep normally that evening.

And FWIW I’m very glad for this. I don’t want it to feel good. I just want to be able to pay rent, not get high on the meds that make it possible.

nkingsy 1 days ago [-]
I’ve only taken it once.

I woke up feeling sick, stiff, and lethargic while staying with a friend in NYC in 2008. My friend said “I’ve got just the thing” and gave me one of his adderall.

20 minutes later I was feeling better than I’ve ever felt in my life. We had one of the most exciting, memorable days in my life, just pinging all over the city. That night we went out to a club, where I somehow charmed a girl way out of my league.

We met up the next day and she was very disappointed.

That is to say, it was quite pleasant for me.

I sometimes think I have undiagnosed ADHD (my daughter has it), but this would seem like evidence against it, as it was undeniably stimulating.

hombre_fatal 24 hours ago [-]
An untrained dose of amphetamine will hit you hard even if you have ADHD, especially if it’s higher than the entry level dose, so I would say it gives you zero information about whether you have the condition.

Funny story though. I have a similar story after my friend walked up to me in a club with a line of coke on his hand. Then I proceeded to charm the girl that became my next girlfriend.

kstrauser 24 hours ago [-]
I’m not so sure about that. My very first dose of Adderall was anticlimactic. I was bracing for the rush from an energy drink or something, and instead felt… nothing. I was just able to focus on work better that day.

Also, cocaine and amphetamines are very different drugs. They’re both stimulants, but that’s about all they have in common.

esseph 13 hours ago [-]
> the rush from an energy drink

I must be dead inside.

(I probably need a caffeine tolerance break...)

StevenWaterman 8 hours ago [-]
You see this in ADHD groups where someone will start stimulant medication for the first time and say "This is incredible. I can't believe this is what everyone else feels like all the time"

And the crowd emerges to reinforce that, no, you're euphoric, this isn't normal, after about a week it'll go away and you'll just feel normal but more productive and have better executive function.

And that's on a starter dose, the parent commenter probably took 2-3x that

cluckindan 1 days ago [-]
The previous poster habitually drinks coffee, and thus already has tolerance to the stimulant effects / increased neurotransmission.
kstrauser 24 hours ago [-]
I’m not buying that. An enormous percentage of the US population drinks coffee. I’m not an unusual case study here.
fn-mote 20 hours ago [-]
Not all of the stimulants work the same way. When (if?) you build up a tolerance to one, you change to a different med. I expect the same applies to the caffeine -> adderall change.
cluckindan 13 hours ago [-]
Coffee is not just caffeine. It contains biologically relevant amounts of monoamine oxidase inhibitors.
larrywright 5 hours ago [-]
As I understand it, it's really only abusable by people who don't have ADHD. It's a stimulant, similar to cocaine in that way. In people with ADHD, it's calming.
1 days ago [-]
Llamamoe 14 hours ago [-]
> is a red flag when some patients will ask specifically for Adderall, as the potential for misuse is much higher. And for him, it was a last resort.

This is so stupid. It's so much better of a medication, the potential for addiction and abuse at therapeutic doses is minimal to none, and yet healthcare systems around the globe are continuing to avoid prescribing it. Ugh.

cruffle_duffle 21 hours ago [-]
Urg, short acting Ritalin is the absolute worst. There are so much better stimulant meds out there.
timcambrant 14 hours ago [-]
Would you care to give any examples?
adastra22 12 hours ago [-]
Vyvanse
ravenstine 1 days ago [-]
Makes sense that methylphenidate helps with most of the things associated with classical ADHD symptoms but not with clumsiness that can lead to accidental injuries; or, in my case, just bruises on my shins all the time.
eyelidlessness 1 days ago [-]
Only personal anecdata, but I’ve observed that I’m far less accident prone since I was diagnosed and have had consistent treatment. I noticed it without prompt, and it never occurred to me before that there would be any correlation.

I’ve also noticed I’m much less accident prone since I’ve been sober, which came a couple years later. I couldn’t say for certain which event correlates with a more pronounced improvement, but both have been quite pronounced.

That said, yes, I can still relate to bruised shins! I’m less accident prone, but still pretty far from immune.

kruffalon 1 days ago [-]
Why?

I don't really disagree with you but I wonder how the thwarted sense of "my body in the world" is so connected to ADHD while not being connected at all to executive functioning (which in my perception is what amphetamines help with).

ravenstine 1 days ago [-]
My understanding is that motor coordination is a mostly separate issue from attention regulation and task completion, so it would make sense that a stimulant would address focus and impulsivity (as well as suicidality and criminality by proxy of those) but not clumsiness. Also, one can have ADHD without being clumsy, but being clumsy alone does not quality for ADHD.

I could be completely wrong, but hopefully that explains my take better. I'd be happy for someone to correct me.

kruffalon 1 days ago [-]
Not a fan of "clumsy" reminds me too much of "lazy"...

Anyway, back on topic: I wonder if there are 2 specific neurodivergencies going on that got wrapped up into ADHD, but only one actually has to do with executive functioning and serotonin (the 70% that get helped by amphetamines) while the other has to do with sensory and body awareness stuff.

If they have high enough co-morbidity or are weirdly co-morbid so that we never see the body stuff unless the person has ADHD we might have a difficult time seeing them as 2 different things that might be close by brain-location or gene-expression or something.

There are murmurs around me about celiac disease being related to ADHD and autism so that would be another thing in the neurodivergent body area

cluckindan 24 hours ago [-]
There are two main variants of ADHD: primarily hyperactive, and primarily inattentive. Then there is a combined type.
skeezyboy 1 days ago [-]
isnt clumsiness always self-reported? ie no clinical test
eightysixfour 1 days ago [-]
My hypothesis - body awareness and injury avoidance is learned and ADHD folks have a less effective reward loop. While the meds help with the reward loop, the person has decades of catching up to do for body awareness.
bluefirebrand 1 days ago [-]
ADHD is strongly associated with inattentiveness and daydreaming so it's not that surprising that people who are daydreaming or not paying attention tend to get injured walking or driving into thinks more often
skeezyboy 1 days ago [-]
its a bit more than an association, theyre symptoms
rmorey 1 days ago [-]
It only didn’t help with the first incident of accidental injuries (makes sense, almost everyone has one early on regardless) but it was still also associated with reduced recurrence
JohnTHaller 1 days ago [-]
Currently unable to remember why I have a bruise on my ribs. I know I walked into something. Methylphenidate HCL doesn't help with that.
notfromhere 1 days ago [-]
honestly I only find that happens when the medication is wearing off. I'm much more spatially aware when its working and that leads to fewer accidental injuries, I see a huge difference in my driving, parking, etc.
briandw 23 hours ago [-]
This was an observational study, not a randomized control trial. Access to care is one plausible confounder. Individuals who receive treatment may differ systematically in socioeconomic status, healthcare access, parental advocacy, comorbidities—from those who do not, affecting outcomes.
nialse 7 hours ago [-]
Haven't read the study yet, though I've been associated with research at the same department. Usually the study design is using matched controls which negates the effect of the parameters you mention. Sweden basically has free healthcare so there is not much difference in access to care, and controlling for the potential residual factors makes studies results quite stable.
autoexec 1 days ago [-]
Not surprised. ADHD medications save lives, including the lives of others when it comes to things like preventing car accidents. I could even see it being required for driving the way corrective lenses can be.
NegativeK 3 hours ago [-]
The World Anti-Doping Agency, who defines what a performance enhancing drug is and if it's banned in sports, grants Therapeutic Use Exemptions for methylphenidate and its siblings. This is despite some countries using other medicines as first-line treatment for ADHD that aren't banned by WADA.

The justification is that treatment for people with ADHD markedly reduces accidents and suicidality, and that banning the drug outright would do more harm than would come from liars getting the drug and harming sports.

teamonkey 1 days ago [-]
That reminds me of an article I read which claimed that being diagnosed with ADHD will prevent you from being a commercial pilot. Pilots will avoid getting diagnosed and medicated because it will kill their career, even though medication may make them safer.

(I suspect ADHD pilots would handle takeoff and landing very well, as well as emergencies, but oh god the checklists and schedules and that whole middle part of the flight…)

viraptor 1 days ago [-]
Pilot licences and any mental health issues seem to be a massive pain in general. Lots of people will avoid treatment/diagnosis to not get affected. Xyla has a video on it https://youtu.be/aj0H8oVS7qg + the Pilot Mental Health Campaign.
combyn8tor 23 hours ago [-]
My meds have me on the ball from about 9am - 5pm. Outside that window I wouldn't trust myself flying a plane unless it was an unusual flight, like flying a new aircraft or flying into a storm, or on a rescue helicopter landing on a highway or mountain. The more routine the more dangerous it gets which is not ideal for your average pilot :-(
autoexec 23 hours ago [-]
What a terrible policy. I sure don't feel any safer knowing that my pilot could have problems going untreated. Just getting licensed seems like it would be difficult without treatment, but it's not like ADHD or other mental conditions are consistent either. You can have good or bad days, or even good/bad months. Those times can be handled with treatment, but I guess we're just supposed to hope our pilot isn't having a bad day when we get on the plane.
baby_souffle 24 hours ago [-]
> Pilots will avoid getting diagnosed and medicated because it will kill their career, even though medication may make them safer.

Yeah, it's an issue! To the best of my understanding, it's not a mark against you if you have had treatment in the past. You can't have a valid license and be taking active treatment, though.

barchar 22 hours ago [-]
It's not a mark against you in that you can still get a medical, but it is a HUUUGE pain in the ass, and very, very expensive.
lazide 12 hours ago [-]
It is definitely a mark against you, in that you must do a huge amount of additional work proving it is no longer a problem.
rimunroe 1 days ago [-]
I've been diagnosed and medicated since elementary school. In the time since, I've been involved in two car accidents. Both times I had forgotten to take my meds, which is a rarity for me.
alfiedotwtf 1 days ago [-]
Before getting onto Vyvanse, I couldn’t drive more than 30 minutes without wanting to stop for a coffee and then needing a red bull to keep going… now I can drive at least a few hours continuous without breaks.
al_borland 1 days ago [-]
How do you feel after those drives of a few hours?

I have driven up to 6 hours at a time, but I'm in hyper-focus mode the whole time and it takes everything I have to stay locked into that focus so I don't die. I think all the time about moving somewhere where I don't need a car. I hate driving and always have.

I recently found out I have ADHD. I haven't tried meds yet (but am having my first meeting with someone tomorrow to explore it as an option). I'm wondering if this will make driving more tolerable for me. It wasn't even something I thought about before this thread.

alfiedotwtf 6 hours ago [-]
Yikes! Yeah no way could I do that without meds. It's amazing hearing of truck drivers driving 13 hours straight... but I guess that's why fighter pilots are on modafinil!

To be honest, now that I'm medicated I think I could at least do 5 hours without stopping. I might need some snacks though - the amount of sugar I've been consuming lately is unnatural

fragmede 16 hours ago [-]
I bought a new-to-me car that supports Comma.ai. It's not full self driving, but it handles the boring parts sitting on the freeway for me. it's the best purchase I've made in recent memory because holy shit sitting there on the freeway forever is the worst.
al_borland 8 hours ago [-]
I tried this, not with comma.ai, but had a VW with lane keeping, adaptive cruise, etc. The first time I did a 6 hour drive with it, it felt like magic. I was essentially on one road the whole time, there was very little traffic, and I didn’t touch the pedals, or really even steer much for 95% of the drive. Just at the start and end when off the expressway.

However, as I made that drive more, it got worse. Traffic was usually heavier, and things didn’t go as well with a lot of traffic. Some of it was how it acted, and some of it were trust issues with it. When traffic picked up or other cars did things around me, I’d switch back to manual control. After a while, I was using manual control the whole time… and then eventually just took the train, because I couldn’t tolerate driving myself anymore.

bsimpson 1 days ago [-]
I've seen so much strongly relatable ADHD content over my life, and had so many close friends get diagnosed, that I've often wondered if I'm in the population, or if it's pathologizing the regular experience of modern humans.

I haven't had mental healthcare, so I don't have much personal insight, but I found this interview with Trevor Noah very interesting. It's the first time I've heard someone who identified with ADHD share his experience, and not have it resonate with mine:

https://youtu.be/SkDvqvpxKBY?si=oszaQx7OOh5G3NXb

whimsicalism 1 days ago [-]
Strong agree, especially with how it has interacted with social media since 2019/2020, but it is a bit impolitic to say.
22 hours ago [-]
22 hours ago [-]
mockingloris 22 hours ago [-]
As someone from Nigeria who's self-diagnosed with ADHD (my brain switches gears on the spectrum, and I've learned to cope without formal help), reading this thread hits different.

Here, access to stimulants like Adderall or alternatives are expensive to be viable to the average household (if there is fore-knowledge, which is undocumented), doctors rarely diagnose ADHD in adults (that kind of access is on the premium side, so many have zero idea).

I self-medicate with coffee and green tea to get that dopamine hit, and mix in novelty tricks (gamifying tasks) to keep my monkey brain engaged. But the cultural stigma? Folks just call it laziness or blame "village people" (supernatural enemies).

It's exhausting, but I've leaned into the positives—like my ability to hyperfocusing on creative work for hours.

US folks, your bureaucracy sounds brutal, but at least diagnosis is an option. Anyone else from outside the West dealing with this?

isodude 12 hours ago [-]
From the West here, but anyway.

> But the cultural stigma? Folks just call it laziness or blame "village people" (supernatural enemies).

Funny, my daughter just stops my explanations after circa one minute, abruptly, saying that her brain just does not listen anymore and there is no reason for me to continue. Which is blunt, but kind. I understand and stop talking, that's that. We can do that since we know our limits, I would assume that Africa in general is more attuned to accepting people as they are? For my daughter it makes a world of difference that she can communicate her ADHD symptoms. The medication are there to make ADHD people behave like "normal" people, but acceptance in the other direction could quite helpful as well.

With some luck and effort you can have some effect with diet. It would be nice to see a graph between the rise of white flour and the amount of ADHD in the world. I would love to step off medication, but it's not doable without switching to sufficient combination training and good diet, I have neither now :) As they point out in the article it can be great to find out your vitamin levels to address shortage.

> These types of complex carbohydrates are less likely to spike your blood sugar levels and help keep you feeling fuller for longer, which may help improve your focus and attention.

> By avoiding simple carbohydrates, like sugar and white flour, you may reduce specific ADHD symptoms. [0]

I just finished fixing my bike (Suntour Perfect) and have started taking it on smaller trips, hopefully that will be _my_ way to a more stable day to day. [1]

[0] https://add.org/adhd-diet/

[1] https://i.ebayimg.com/images/g/NxQAAeSwpg1odZbS/s-l1600.jpg (about the same bike)

roody15 10 hours ago [-]
My experience with ADHD medication now going on over 2 years has been mostly positive.

I am much more effective at getting things done at work and in this regard has been quite positive.

Negative and positive on a personal relationship level. I have much better awareness of conversation dynamics and am more focused and able to listen much better. The downside would be the impact on existing relationships. The medication has an impact on personality and emotional dynamics that have been hard to navigate. With more awareness and focus in existing relationships in some ways has provided insight into unhealthy relationship dynamics and re-negotiating these is not easy.

In short if you change you vibe this has a ripple effect in other areas of your life. My experience at least.

veunes 7 hours ago [-]
The finding that ADHD medications (particularly stimulants) are associated with reductions in not just core symptoms, but also serious downstream outcomes like suicide attempts, substance misuse, and criminal behavior, is important
HDMI_Cable 13 hours ago [-]
It's quite sad that ADHD is as stigmatized as it is: even though it is a very well-characterized condition in psychiatric literature, the most common 'pop-science' take one hears about it is that ADHD is completely overdiagnosed and may not even exist as a condition. Also, I know multiple people, even though well-managed ADHD would not negatively affect their careers, are barred from certain professions (like high-security military careers and being pilots) simply due to having ADHD and being medicated for it.
squigz 9 hours ago [-]
I suppose well-managed drug abuse would not negatively affect their careers either, but I think it's a good thing you can't become a pilot or similar with certain conditions.
20 hours ago [-]
b8 22 hours ago [-]
It took 3 months just to get get an initial appointment with my Psychologist and then two months later to get formally tested. Another month wait afterwards to meet with her and get treatment started (Adderall, Xanax etc.). I moved to Kentucky for college and the college doctors as well as many local psychiatrists wouldn't refill my Adderall and Xanax. It took me 3 months of fighting with the college health center to get them to find me a place that would refill and take over my mental health care. My Psychologist couldn't refill them out of state. It's annoying long to get care and to have to fight with doctors.
bluefirebrand 1 days ago [-]
I was diagnosed with ADHD in my early 30s and prescribed Concerta to help manage it

For a few years being medicated for ADHD was a godsend. I was finally able to be more productive and focus on work, my career took off in a huge way, I've literally tripled my income since I started medication

Now I'm incredibly burned out, I've been having pretty severe memory problems, I'm on medical leave from my job to try and course correct a bit here. I don't think this is purely caused by the medication, I think it is stress related as well, but my doctor's only course of action right now is to reduce and re-evaluate my meds

On one hand, being medicated was incredible for me. It felt like it finally let me overcome my demons and be the person I wanted to be and always knew I was capable of being

On the other hand, if it led to my current situation it's probably one of the worst choices I could have ever made. I hate having massive holes in my memory like this, and being burned out this way is extremely difficult to bear

So... If you can balance things better than I could, it's still probably worth being medicated. I don't regret it I just wish it hadn't burned me out like this

ravenstine 1 days ago [-]
Not saying it can't be the methylphenidate, but I would suspect it likely has more to do with your career than you might be giving it credit for. I don't know what your background is but, since you're on HN, I can make an educated guess and say you work in tech, which can both be a highly rewarding career but also one that can really drain the soul. The worst part about the soul-sucking is that our jobs are superficially very comfortable, so it's easy to talk yourself into just appreciating what one has and ignore your feelings.

I recommend giving up caffeine if you haven't done so. That alone had a much greater impact on my daily functioning than taking breaks from my medication. It took my body a week to recalibrate, but my mentality and my energy has been way more even throughout my days. The nice thing too is I can sometimes have caffeine when I feel like I can benefit from it and it actually has a positive effect rather than just keeping you barely at baseline for a few hours.

bluefirebrand 32 minutes ago [-]
Hey, I don't really have any big reply or anything here but I wanted to say thank you for the advice and the care

It is really nice to know there are people who give a fuck out there and I appreciate it a lot

pizzadog 1 days ago [-]
Wanna add my 2c here, I feel you strongly. I had a similar path, getting medicated in my 30s and feeling like it destroyed barriers I had been struggling with my entire life. But it has resulted in some negatives as well, like you mentioned.

My hypothesis is that people like myself, and maybe you, have adapted ourselves to being productive with our pre-medication brains. You can only do it at certain times, for short bursts, and in particular ways. It's not really in your "control" how it happens, so you come to terms with doing work when you can. Then, when you become medicated, you don't need to do that anymore. It's exhilarating. You can just work like everyone else does. The problem is that other people have lived their entire lives learning how to balance that kind of drive and we haven't, so we go overboard and grind ourselves down.

Additionally being on the meds all the time can fuck up your sleep. Sleep debt is no joke and the meds get less effective when you're tired ime. I've had memory issues as well and I chalk it up to the sleep debt almost entirely. The obvious answer is to take breaks, but it turns out you need to be able to effectively execute on the weekend too. There aren't that many viable time slots to take a vacation from responsibilities. It's such a faustian bargain and I deeply dislike that we're saddled with this bizarre maladaptation for modern life.

12_throw_away 1 days ago [-]
> On the other hand, if it led to my current situation it's probably one of the worst choices I could have ever made. I hate having massive holes in my memory like this, and being burned out this way is extremely difficult to bear

Considering the timing, have you considered the possibility of long COVID? I ask because the symptoms you describe are not typically associated with ADHD stimulants, but definitely are typical of post-viral syndromes [1].

[1] https://www.pnas.org/doi/10.1073/pnas.2426874122

bluefirebrand 1 days ago [-]
I have considered it, but in proper ADHD fashion I completely forgot to follow up. Thank you for the reminder that I should go get tested for that while I am still on my medical leave
solid_fuel 1 days ago [-]
When I first got diagnosed and medicated I pretty quickly burned myself out, too. When you spend your whole life basically unable to work in the way you want to, it can be intoxicating to finally be productive.

It's genuinely hard to describe how good it feels. But it's important to slow down and objectively evaluate how much work and time you are putting in, because burn-out is always a risk.

---

Edit to add - memory holes are also a pretty common effect of high stress levels. If you really got into work and doubled or tripled down on your effort once you got medicated it could easily be causing some of the effects you are experiencing.

Snarwin 1 days ago [-]
It's possible that without the medication, you wouldn't have gotten burned out like this. But it's also possible that you'd have missed out on all of the benefits of being medicated and still gotten burned out anyway.
alaithea 23 hours ago [-]
I feel this. It's so very hard to manage one's medicated-ADHD productivity in a way that feels useful but doesn't burn like a white-hot flame.

My boss has been supportive and really helped me see the ways in which I was causing myself burnout, encouraging me (as a senior tech IC) to write things down, do more knowledge and skill transfer, and delegate more. That helped me a lot.

What I used to think of as "autonomy," which I valued so highly, following the shiny problems that made my brain happy, was more lone wolf behavior than I like to admit, and not serving me very well career-wise, as it was hard to document or sell what I was doing.

I also had to privately learn how to pace myself, setting realistic, appropriate and prioritized daily goals (nevermind the arm's-long TODO list). Checking myself against those, aiming for better goal-setting each day. Being able to close the laptop when it's done. I never really had a sense of "done" before, I had a lifetime of feeling always-behind. There's this peace, though, that comes with realizing that you _can_ prioritize effectively, do the things, then rest. That peace can become its own reward, which is bananas to me, because my unmedicated brain would never have felt that.

Speaking of which, I might never have had the head-space to work on things like this if I hadn't gotten medicated five years ago. My career has improved and stabilized. For the first time in my life I've stayed at a job for more than three years. Been promoted. Been able to see a future that doesn't just involve running from a job when things get too hard and starting again.

The side effects can be a beast, though. I wonder to myself how many more years I'll be able to manage them.

I wish you the best in finding your way back to a place that works for you.

intended 17 hours ago [-]
> I also had to privately learn how to pace myself, setting realistic, appropriate and prioritized daily goals (nevermind the arm's-long TODO list). Checking myself against those, aiming for better goal-setting each day. Being able to close the laptop when it's done. I never really had a sense of "done" before, I had a lifetime of feeling always-behind. There's this peace, though, that comes with realizing that you _can_ prioritize effectively, do the things, then rest. That peace can become its own reward, which is bananas to me, because my unmedicated brain would never have felt that.

This is pretty much what I am working on, and I too have had followed the “burn out after getting diagnosed and medicated” arc.

Being able to set realistic, appropriate, and prioritized daily goals, and aiming for better goal-setting each day. Sounds like a good thing to aim for.,

I still don’t have a sense of “done”, and struggle to achieve that, even though I know I managed to move the needle a bit.

How long did it take you to get to this point? And how do you deal/ identify/ know you are “done”?

bluefirebrand 23 hours ago [-]
> For the first time in my life I've stayed at a job for more than three years.

This is exactly my experience... I'm on leave now and it's just barely past my 3 year mark at this job. And the last time I burned out this hard was also the last time I passed 3 years at a job

I feel very defective at times, for being unable to stay at a job longer than this without burning out

footy 1 days ago [-]
I don't know how old you are, or how long you've been on Concerta. But to provide a different experience to anyone reading this:

I too got (re)diagnosed in my 30s and prescribed Concerta. Rediagnosed because my mom then told me I'd been diagnosed as a child and she just never told me. Finding the right dose took some trial and error, and to be honest "the right dose" is something that will probably vary throughout my life based on how good my non-medication ADHD management is going. But for me it's been life-changing without burning me out, and it's been almost 7 years.

I also think even without the medication the diagnosis is worth it. It clarifies your life somewhat, if there are things you have struggled with that it explains.

gms7777 1 days ago [-]
> I also think even without the medication the diagnosis is worth it.

Yeah, I think our society views so many symptoms of ADHD as the worst type of personal failings, so I think there's a level of trauma associated with growing up undiagnosed and being consistently blamed and shamed for things that were out of your control. Even without medication, getting diagnosed was, for me, the first step towards healing and starting to unpack all that shame.

moojacob 23 hours ago [-]
This happened to me over a decade ago. Medication was a godsend, and then I burned out. I remember sitting down to do work and not being able to start anything so I would pull up a dumb io game.

So I went off, and for the next 5 years I still couldn't focus. It got worse actually. I did a lot of caffeine. After COVID I started to work out and then suddenly for the first time ever I could focus. As long as I don't do caffeine, workout, and sleep I am sharp. I've done great work in the past couple years but I do feel cheated that Adderall stole time from me. I wonder where I would be with my career if I hadn't burned out.

entropie 1 days ago [-]
> Now I'm incredibly burned out

My SO has severe ADHS from early childhood on and gets medicated (first ritalin, now elvanse). She is always stressed because she has a guilty conscience; she does more things every day than she has time for. She has sleeping problems.

It's such a fast-paced lifestyle that it quickly takes its toll, and it's not as if it gets better with age. Its very hard to maintain a healthy lifestyle while permanently being "all-in" into something.

swader999 1 days ago [-]
Same, real life Flowers for Algernon.
daralthus 1 days ago [-]
If that helps, I get burnt out on just red bull already...
lazide 1 days ago [-]
The medication can help you do things that are beneficial and useful for you better.

It can also help you screw yourself more thoroughly, if you use it to do bad things for you.

skeezyboy 1 days ago [-]
[flagged]
notfromhere 1 days ago [-]
ADHD is a neurodevelopmental disorder that's highly inheritable.
woadwarrior01 1 days ago [-]
I've seen first hand that assortative mating[1] is also very prevalent with ADHD. Which makes it even more heritable.

[1]: https://pubmed.ncbi.nlm.nih.gov/33322995/

notfromhere 1 days ago [-]
in my own family line it is painfully obvious that it's a heritable disorder.
Ancapistani 1 days ago [-]
Obviously it's characterized as a disorder, but I really think that perspective should be challenged.

Like autism, the diagnostic criteria are almost exclusively framed in how other people are impacted or inconvenienced by it. Very little attention is paid to the experience of the person actually living with it.

I see it as a difference, but not necessarily a disorder. As someone with "severe" ADHD there are tons of things that I'm substantially better at than I would be if not for the condition.

I believe ADHD is "rising" because our culture has grown more homogenous in recent decades, resulting in people with ADHD attempting to adapt to environments that are designed for and run by people without ADHD.

notfromhere 1 days ago [-]
Do you have ADHD? Because as someone that has it, it's definitely very much something that heavily impacts the individual with it, and not just society.

It's hard to consistent do things, form habits, maintain attention. You have almost a lack of object permanence, a hard time remembering long-term memories, etc. There are so many problems it causes that aren't even occupational related but lead to negative outcomes outside of your personal engagement in social and economic environments.

Yes, society isn't really designed for folks with ADHD, but also the prevalence of ADHD was somewhat disguised by the fact that mental health had a social stigma and that smoking was incredibly common and people were basically microdosing stimulants every hour as such. It's not that shocking to think that the decline in smoking made adhd much more apparent.

Ancapistani 16 hours ago [-]
Yes, I have ADHD. Severe enough that I’ve lost jobs over it.
amanaplanacanal 1 days ago [-]
I think you are half right. The criteria for hyperactive type seem to match what you are saying, but the criteria for inattentive type are more about the patient.

My symptoms are all about how they are holding me back, and nothing about how they inconvenience the people around me.

bluefirebrand 1 days ago [-]
Yeah both my parents show some signs of it tbh but neither as severely as me
skeezyboy 1 days ago [-]
[flagged]
notfromhere 1 days ago [-]
Why should I relieve you of the joys of self-directed learning?

https://en.wikipedia.org/wiki/Attention_deficit_hyperactivit...

squigz 1 days ago [-]
What exactly is the point you're driving at, if any? Why are you asking these questions?
skeezyboy 1 days ago [-]
[flagged]
Mordisquitos 1 days ago [-]
I have a question for you. For context, in case you haven't read it, we are discussing scientific paper reporting a large population study (almost 150,000 newly-diagnosed ADHD patients, aged 6–64 years old) which compared the outcomes of those who were medicated (~57%) and those who were unmedicated (~43%). Around 88% of the medicated cohort were prescribed methylphenidate (e.g. Concerta or Ritalin).

The conclusions of the study, copy-pasted from the abstract, were:

> Drug treatment for ADHD was associated with beneficial effects in reducing the risks of suicidal behaviours, substance misuse, transport accidents, and criminality but not accidental injuries when considering first event rate. The risk reductions were more pronounced for recurrent events, with reduced rates for all five outcomes. This target trial emulation study using national register data provides evidence that is representative of patients in routine clinical settings.

My question is this: if we assume ADHD does not exist, what is going on here?

Specifically, how do you explain so-called "ADHD" patients who were medicated having a statistically significant lower risk of suicidal behaviours, substance misuse, transport accidents, criminality, and recurrent accidental injuries than those who were not medicated?

Do you think non-"ADHD" individuals (i.e. who don't fit the current diagnostic criteria for this assumed fictional disorder) would also display a reduced risk of suicidality, accidents, etc. if they were to take methylphenidate on a daily basis?

alfiedotwtf 1 days ago [-]
Needing to fix ADHD is itself a cultural thing. Back 100 years ago, you didn’t need an 8 hour attention span to sit at a desk staring at a monitor while the AC dries your eyeballs until they feel like foil scratching on a blackboard
notfromhere 1 days ago [-]
100 years ago people smoked like chimneys and were basically self-medicating with nicotine. The classic 'coffee and a cigarette' breakfast is the most ADHD-coded thing imaginable.
teamonkey 1 days ago [-]
100 or even 200 years ago there were industrial and bookkeeping jobs that would have been just as difficult for those with ADHD.
squigz 1 days ago [-]
No instead you might sit at a desk writing by lamplight, having your eyes dried out by smoke, assailed by the smell of horse dung (among other things)

I really don't understand this idea that people with ADHD didn't suffer in the past or that the problems we face would magically disappear if society was just organized a bit differently. Would it alleviate a lot of the pressure? Certainly, but it wouldn't do away with the problems. It's the same with autism.

danaris 1 days ago [-]
There are ways in which ADHD is a societal issue rather than an individual one, sure.

But they're not the whole of ADHD.

If I habitually lose track of time, get wrapped up in the game that I'm playing, and forget to meet up with my friends when we've agreed to because of it, I'm going to lose friends. That's not a societal problem, that's just how relationships work.

If I absentmindedly leave a half-eaten yogurt out on the counter, and my clutter blindness makes me forget it's there for a week, it's going to grow mold. That's not a cultural thing, that's just how mold works.

And so on.

skeezyboy 1 days ago [-]
[flagged]
nahikoa 1 days ago [-]
Not quite? Here's the DSM-5 criteria:

https://www.aafp.org/dam/AAFP/documents/patient_care/adhd_to...

skeezyboy 1 days ago [-]
[flagged]
anonymars 1 days ago [-]
Physical pain is subjective too. What isn't?

It also appears all the qualifiers are removed, for example

* Often appears not to be listening when spoken to

* Frequently loses items required for tasks and activities

* Is frequently easily distracted by extraneous stimuli

* Often forgets daily activities

* Is frequently reluctant to engage in tasks which require sustained attention

and so on.

Everyone forgets a name or a word every once in a while and that doesn't mean they are senile, yet we recognize senility exists past a threshold.

542354234235 1 days ago [-]
Additional context.

> Symptoms and/or behaviors that have persisted ≥ 6 months in ≥ 2 settings (e.g., school, home, church). Symptoms have negatively impacted academic, social, and/or occupational functioning. Inpatients aged < 17 years, ≥ 6 symptoms are necessary; in those aged ≥ 17 years, ≥ 5 symptoms are necessary.

Clearly these aren't saying "have they ever misplaced anything?" or "have they ever forgotten anything?". Sure, most people have had some of these things happen some of the time. Yeah, all kids find homework boring, but most kids are still able to do it. Most kids forget things, but aren't losing multiple coats every winter. Most people aren't experiencing these symptoms to such a degree that it significantly impacts their ability to function.

notfromhere 1 days ago [-]
i'm confused as to why you think you're suddenly the arbiter of the lived experience of others? all of the questions you're asking are things that are easily found online, but something makes me think you're not after knowledge.
danaris 1 days ago [-]
Are you really here trying to claim that ADHD is not a real developmental disorder? To a bunch of people who have lived all their lives with ADHD?

Yes, the symptoms of ADHD are mostly things that most people experience sometimes in their lives. The reason it's a disorder is because they occur commonly enough to affect our lives.

This is not that dissimilar from many other neurodivergencies and mental health issues: Many people feel anxious from time to time. Many people enjoy the rush of gambling from time to time. Most people do not have clinical anxiety or gambling addiction.

Next time you're tempted to come into a thread of people talking about a widely-recognized developmental disorder or mental health problem and drop your superior wisdom that actually, it's not real, and you're much more rational and intelligent than we all are, because you can recognize that the diagnostic criteria are "subjective," which is the same as saying they're meaningless, please consider turning off your computer and going outside instead.

amanaplanacanal 1 days ago [-]
Pain is entirely subjective and self reported, but we are still pretty sure it exists, and we have medical treatments for it.
bluefirebrand 1 days ago [-]
Being born with or developing a dysregulated nervous system
skeezyboy 1 days ago [-]
[flagged]
axoltl 1 days ago [-]
Concerta is extended release methylphenidate. It is not an amphetamine.
liveoneggs 1 days ago [-]
both are stimulants though
axoltl 1 days ago [-]
So are caffeine and nicotine, I'm not sure what your point is.
notfromhere 1 days ago [-]
And yet, study after study doesn't actually show any of that. What happens is that ADHD tend to progress as you get older
lethologica 21 hours ago [-]
Psilocybin “fixed” my ADHD right up.
thirdacc 21 hours ago [-]
With continuous use or a one-time dose? What was the dosage?
lethologica 18 hours ago [-]
A one time, 5g “heroic dose” did the trick for me. I’ve had a few more trips at that dose since that initial one but mostly because there’s a whole lot for me to explore in that space, rather than me trying to “cure” something.

It took me as a real surprise when, after that first trip, all my ADHD symptoms simply vanished, never to reappear.

narcotraffico1 21 hours ago [-]
The DEA is responsible for the absolute shitshow that is trying to get ADHD treatment. Abolish the DEA.
chris_wot 13 hours ago [-]
What the heck is with this title? The actual title is "ADHD drug treatment and risk of suicidal behaviours, substance misuse, accidental injuries, transport accidents, and criminality: emulation of target trials"
2c2c2c 1 days ago [-]
Curious if anyone has gone through the process of an adult adhd diagnosis at Kaiser SF.

Through my attempts, I've been told they don't really do adult adhd diagnoses without documentation of issues as a kid. I was recommended Wellbutrin to deal with symptoms in 2017. Got onto adderall when I moved health insurance in 2021. Back to Kaiser in 2024, I was routed to the same psychiatrist who once again wouldn't budge on adderall and once again recommended Welbutrin.

I used an online clinic to get my assessment (which I understand isn't taken seriously) which is what she cited. I asked what aspect of the assessment documentation did she think left me unqualified and she cited marijuana use in 2016. I asked her how she squares the fact that I'm an adult professional that makes comparable money to her, I have experience using both wellbutrin and adderall and see the former doing nothing and the latter helping, there's hundreds of times more evidence for adderall efficacy vs the flakey data on wellbutrin... She responded with something like: "I believe in my heart of hearts that what I am doing is right".

I thought the entire situation was kind of insane. Further research into the person makes me think they're a bit of a loon.

least 1 days ago [-]
When I was on Kaiser, it was an absolute nightmare trying to get any traction. They had me do a computer test and, I guess because the results of it (which aren't disclosed to you) did not indicate ADHD, they would not consider the wealth of documentation I had ready to take a look at my old school records. I asked for a second opinion and the next psychiatrist they assigned to me was aloof and refused to consider anything, either. They did give prescribe me bupoprion which did absolutely nothing for me (though I have heard it works for others).

I'm now on a PPO plan and have been using Vyvanse for over a year now. It's lead to a dramatic improvement in my quality of life. I grieved for the time and opportunities I had lost due to not having been diagnosed and treated in childhood.

HMOs have a lot of upsides, but Kaiser's behavioral healthcare is awful (at least in the DC Metro area) and there's not much recourse unless you want to/can afford to pay out of pocket.

There's so much cynicism about ADHD even existing, even among healthcare professionals. Any time on HN any mention of ADHD seems to invite a lot of cynicism as well. That, compounded with that one of the most effective treatments for it is something that pretty much everyone can see a positive effect from (stimulant medication), makes it really difficult to navigate.

I hope that you can find a better option because it seems like Kaiser is just very antagonistic towards ADHD.

notfromhere 1 days ago [-]
Too many psychiatrists do very little continuing education in their practice. I have heard more than a few try to asset that ADHD can only be diagnosed for children.

As if a neurodevelopmental disorder just magically vanishes when you hit age of majority.

It's pretty wild that despite it being a disorder that has been documented for hundreds of years, people still make the argument that people are just lying.

trashface 1 days ago [-]
I saw a (alleged) medical student claim on reddit that its childhood-only just last year. So that indoctrination appears to be ongoing.
doubled112 1 days ago [-]
I think a lot of people see "developed coping strategies and learned to tell people what they want to hear" as "grew out of it".
hinkley 1 days ago [-]
The Olds probably remember when it wasn't even in the DSM and the Scientologists were busy demonizing Ritalin.

Apparently showing up in the DSM has fixed fuckall.

koreth1 1 days ago [-]
I didn't get a diagnosis at Kaiser SF, but I was able to get meds through them. Maybe this will be of use to you.

I was diagnosed by a non-Kaiser psychiatrist I found on my own. After trying different prescriptions, we eventually settled on Concerta. I stayed on that (and continued seeing the same psychiatrist, whose service I paid for out of pocket) for about 4 years.

Then my psychiatrist had some family stuff come up and had to move out of California. Since she was no longer going to be licensed here, she couldn't keep prescribing my meds to me. But she was able to write a letter describing my situation and laying out how she'd arrived at the prescription I was on, with particular emphasis on the fact that she hadn't seen any evidence of misuse on my part. I gave that letter to my Kaiser primary care doctor, who agreed to take over the prescription. After that I was able to get my meds from Kaiser each month without any issues.

I imagine this kind of setup depends on your primary care doctor; I may have just gotten lucky with mine.

Fwirt 1 days ago [-]
This is exactly my experience. I got diagnosed as some variant of bipolar 9 years ago and put on a mood stabilizer, but the symptoms never really fit. I’m in general high functioning and got great grades up through postsecondary, didn’t start really having a problem until I started experiencing burnout after having kids during the pandemic. Got evaluated for ADHD, psychiatrist focused on childhood symptoms. Refused to prescribe anything for ADHD because ADHD meds can cause manic episode in bipolar patients, they put me on Wellbutrin instead. Wellbutrin (which affects different people very differently) caused me to have a crisis and spent a week in inpatient care at a non-Kaiser facility.

It was the best thing that has happened to me in years. Inpatient psychiatrist disagreed with the bipolar diagnosis and said that inpatient care was a safe space so we could try Adderall and a different antidepressant (Lexapro). On Adderall I feel calmer, less anxious, and if I’m tired it actually puts me to sleep, which is all in line with ADHD patients. I can focus at work again and have my life back.

I don’t feel like I’ve “lost” anything on Adderall, I would describe my experience with ADHD as having a buggy thread scheduler that would overallocate CPU time to background threads. On Adderall I feel like I have control again. I can still daydream, but all 5 trains of thought are not trying to enter the station at the same time.

I’ve had 3 different Kaiser psychiatrists and all have been sub-par, refusing to re-visit prior diagnoses, being aggressive and overly rigid in their own opinions, and sometimes just being plain incompetent. My recommendation is to seek mental health care from somewhere outside Kaiser that accepts Kaiser insurance. Kaiser’s mental health division is oversubscribed and probably underpaid. Overall our experience with Kaiser has been that no matter which division you’re dealing with, you have to be pushy and advocate for yourself or they’ll just slap the easy label on you and throw medications at the problem that may or may not actually address the root cause.

I’m very open about my experience because mental health issues are highly stigmatized in this country and there are a lot of people who don’t get the care they need. Accepting that I needed inpatient care was one of the most difficult things I’ve ever done, but coming out the other side it was nothing but a positive experience and I feel like I have my life back.

f0daf0da 1 days ago [-]
I made an account just to post this as I’ve gone through something similar. Get a formal psychiatric evaluation done out of network by a neurologist who specializes in ADHD. The exam will take a few hours and they will send you a full report and diagnosis. This paperwork will help you a LOT. I’ve used it multiple times when I’ve had difficulties getting care and was well worth the time and money.
hinkley 1 days ago [-]
I don't even know why they have formal tests. Any health professional and half of the repairmen I've had to my house that has talked to me for more than two hours knows I have it. And probably you too.
23 hours ago [-]
haliskerbas 1 days ago [-]
What do I look up to find places and providers that do this especially if I don’t have a relationship established with the place already.
therobots927 1 days ago [-]
Personally I had success with my primary care doctor. But you could also look into online telehealth diagnosis. That was my backup plan to ensure I have access to medical treatment.
kstrauser 1 days ago [-]
You in California by chance? I can recommend an online provider here, but they only serve CA patients.
hinkley 1 days ago [-]
Try to talk your doctor into gaunfacine. It was an attempted BP medication that had stronger action on the prefrontal cortex, reducing rejection dysphoria (which exacerbates executive function issues). At the very least it might make it easier to confront your doctor about not prescribing stimulants. It's also compatible with Wellbutrin.

Downside is you have to absolutely avoid grapefruit unless you want to find out what bradycardia feels like.

dkenyser 1 days ago [-]
I had pretty much the exact same experience even with a childhood diagnosis and extensive records indicating I only responded well to stimulant-based medication.

The whole process became so burdensome I just gave up and now I self medicate with Nicotine pouches.

Not proud of it and probably not the best alternative but it helps me focus and keeps me out of the stress of the constant back and forth that healthcare providers put you through.

baby_souffle 24 hours ago [-]
> Curious if anyone has gone through the process of an adult adhd diagnosis at Kaiser SF.

Yep. It appears to be different by region. When I left the bay area and moved to a different kaiser region, they didn't accept any of the medical history from the bay and I had to start over again. Yes, I did have the prescribing pshyc from the bay area send the detailed clinical notes to kaiser but because I didn't take _their preferred_ computer diagnostic tests, I had to start over. Nevermind that the psych I was seeing in the bay area has been treating ADHD since Reagan was in office, the computer test was worth more than the medical professional's experience and opinion!

1 days ago [-]
kstrauser 1 days ago [-]
That makes me want to scream on your behalf.

"I believe in my heart of hearts you suck at your job as a psychiatrist."

liveoneggs 1 days ago [-]
try a nicotine patch
bookofjoe 1 days ago [-]
Full title: ADHD drug treatment and risk of suicidal behaviours, substance misuse, accidental injuries, transport accidents, and criminality: emulation of target trials
skeezyboy 1 days ago [-]
[flagged]
pooloo 1 days ago [-]
As others have stated this is not what the article/study states, also speed is related to a street drug with unknown dosage and control. While the prescribed pharmaceutical-grade medication is precise and well managed with slow release mechanism, making it vastly different from the street drug.
skeezyboy 1 days ago [-]
I wouldnt call it vastly different. It cant be abused for euphoria, but it still has an addiction warning on the label.
footy 1 days ago [-]
I'm on methylphenidate and if it were addictive I wouldn't forget to take them... well, probably pretty much ever, unless I misunderstand addiction. In reality I forget to take them once or twice a week.

I recently started using one of day-of-the-week pillboxes, so I can tell you this week it was Tuesday.

kstrauser 1 days ago [-]
> I recently started using one of day-of-the-week pillboxes

This is the way. I would absolutely forget to take my Adderall if it weren't in a pillbox next to my toothbrush.

birthdaywizard 1 days ago [-]
> It cant be abused for euphoria

Depends on the drug, vyvanse can't really be, but focalin can.

skeezyboy 1 days ago [-]
[flagged]
notfromhere 1 days ago [-]
you're doing a lot of imagining all over this thread. none of it is really based in any kind of objective reality.
beschizza 1 days ago [-]
What's great about this comment is it gets two things wrong: the conclusion of the study (which found reductions across the board in fuckedupedness) and the drug being studied (Ritalin, not Adderall i.e. "speed")
tonyarkles 1 days ago [-]
I don't think the article is saying what you think it's saying:

> Drug treatment for ADHD was associated with beneficial effects in reducing the risks of suicidal behaviours, substance misuse, transport accidents, and criminality but not accidental injuries when considering first event rate. The risk reductions were more pronounced for recurrent events, with reduced rates for all five outcomes. This target trial emulation study using national register data provides evidence that is representative of patients in routine clinical settings.

californical 1 days ago [-]
That’s the opposite of the conclusion, though?

> Drug treatment for ADHD was associated with beneficial effects in reducing the risks of suicidal behaviours, substance misuse, transport accidents, and criminality but not accidental injuries when considering first event rate. The risk reductions were more pronounced for recurrent events, with reduced rates for all five outcomes. This target trial emulation study using national register data provides evidence that is representative of patients in routine clinical settings.

1 days ago [-]
gg4949 1 days ago [-]
maybe if you took your speed you would have understood the paper
toasted-subs 22 hours ago [-]
The funny thing about this is sex actually does a good job at treating ADHD symptoms. Sad to see most doctors prescribing medication instead of helping kids get laid.

Almost argue most adults are doing the opposite which makes me concerned for the population.

falcor84 21 hours ago [-]
That matches my intuition, but has there actually been any proper research on this? I failed to find any now.
herbst 15 hours ago [-]
I find the effect very short lifed personally.
squigz 21 hours ago [-]
I'm confused and concerned. Are you suggesting that adults - doctors - should be... helping... children... get laid...?
FollowingTheDao 1 days ago [-]
Do any of you ever wonder why, genetically and/or nutritionally, you have ADHD?

I advise you to take a look at the role of GABA in ADHD. It’s probably more important than the Norepinephrine and dopamine.

https://www.sciencedirect.com/science/article/pii/S002839082...

mjoin 1 days ago [-]
Thanks
jmogly 1 days ago [-]
I was diagnosed as a kid, I never really took the meds consistently. My perspective now is that adhd people are a minority tribe, very chill people living in an unchill world. I feel blessed that I have the ability to function and find my place in this world without taking the meds, not everyone with the “disease” is so lucky. Having adhd you feel alot like an alien most of the time, which can of course be alienating but also very liberating.

The question I pose to the “it’s a disease, medicate it” crowd is; is the person maladapted or is the culture maladaptive?

fsiefken 24 hours ago [-]
It's not necessarily that black and white, it can be both. When my girlfriend asks me to do the dishes quickly and I've still not done them after an hour because something objcetively less important was more interesting to me - then there's a problem as it's a fair request. The unconscious unhelpful thoughts and behaviours you develop because of ADHD work against you - because at the end of the day you also have to take care of yourself (cut your nails, floss your teeth, wash your clothes), not only the household. The connections you have with colleagues, friends, family and yourself are something you have to manage consciously - either with sports, meditation and journaling or medication - or both! It's easy to say, society is maladaptive. you could say, let all these adhd people just do creative work or teaching - but then they still have to organize and care for themselves. Alternatively give all those diagnosed a free pass to not meet demands and expectations of society and give them a basic income. I'd rather help myself or let myself be helped to meet the minimum demands and expectations of work and significant others - the alternative is: he can't be a responsible human being, cannot be asked to do a simple job, as he's always with his head in the clouds. Of course ADHD is also a superpower, but a handicap as well (to me).
alexrp 24 hours ago [-]
> The question I pose to the “it’s a disease, medicate it” crowd is; is the person maladapted or is the culture maladaptive?

Overwhelmingly the former in my case. I'll have projects that I desperately want to work on for weeks or months, but just can't bring myself to actually get started on without the extra push from Vyvanse.

It would be nice if society could be just a bit more accommodating for people with ADHD, but that would do nothing to fix this problem for me.

thelaxiankey 22 hours ago [-]
the thing about being human is you internalize cultural values as your own.

if you lived in a society that valued, i dunno, tracking and hunting down giraffes in small groups, would you have the same struggles? what if just participating in society required ~20 hours of athletic activity a week? i'm not entirely convinced you would have this problem, based on the anthropology i've read.

the signal of a maladaptive culture is not 'i feel like the people around me have a moral failing'. It is 'i, and many others, feel like we've all got basically the same moral failing.'

personally, this has been a very helpful reframing. If I simply can't bring myself to do something, that means not that I am bad and my willpower is bad, it just means that something is materially wrong and I should consider addressing it by doing things that my body will let me do.

alexrp 14 hours ago [-]
My desire to work on said projects is intrinsic; no one around me expects me to do so. In fact, quite a few of my projects add no value to broader society and exist only because I found doing them interesting. I don't imagine the surrounding culture valuing the hunting of giraffes would particularly affect this one way or the other. (Except if said culture doesn't have computers, I guess.)

> personally, this has been a very helpful reframing. If I simply can't bring myself to do something, that means not that I am bad and my willpower is bad, it just means that something is materially wrong and I should consider addressing it by doing things that my body will let me do.

To be clear, I don't think I'm "bad" or that I have a moral failing just because I can't bring myself to do some things. (If anything, that sounds like an internalization of some unfortunate cultural norms...) In my case, it's a contradiction: I want to do a thing for intrinsic reasons, but I can't bring myself to do the thing due to insufficient motivation/focus (for lack of a better term). It can be maddening at times.

But if we take a more typical example that many ADHD people struggle with like, say, doing the dishes or cleaning the house... I guess I don't really understand what might be "materially wrong" here, or how doing something else addresses whatever that is or, more to the point, actually gets those chores done...? This sounds a bit hand-wavy to me.

squigz 9 hours ago [-]
> But if we take a more typical example that many ADHD people struggle with like, say, doing the dishes or cleaning the house... I guess I don't really understand what might be "materially wrong" here, or how doing something else addresses whatever that is or, more to the point, actually gets those chores done...? This sounds a bit hand-wavy to me.

We can go a lot more fundamental than this, too. What about brushing your teeth? Showering? Eating? I can keep going.

There are some things you can handwave away as being society's fault, but there are far, far more things that, no matter how much society changes, will still negatively affect me.

draw_down 1 days ago [-]
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